What is Amniotic Band Syndrome?

What is Amniotic Band Syndrome?Amniotic Band Syndrome occurs when the fetus becomes entangled in fibrous string-like amniotic bands in the womb, restricting blood flow and affecting the baby’s development.

Amniotic Band Syndrome can cause a number of different anomalies depending on which body part(s) is affected.

If a band wraps tightly around a limb, the limb can actually be completely amputated. The baby may be born missing fingers, toes, part of an arm or leg. If the band is across the baby’s face it can cause cleft lip and palate. In a large number of cases the baby is also born with clubfeet. ABS is also the cause of numerous miscarriages, such as when a band becomes wrapped around the umbilical cord.

ABS occurs randomly. It’s not genetic, nor is it caused by anything a pregnant Mom did or didn’t do during pregnancy. To date, no prenatal factors have been associated with ABS. It is extremely unlikely that ABS will affect a future pregnancy.
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Evan’s Story

My son, Evan, was born with ABS affecting his left hand and with bi-lateral clubfeet. A band wrapped around Evan’s left hand, and as a result three of his fingers didn’t fully develop and they remained webbed (syndactyly). Evan also had bilateral clubfeet  I invite you to read Evan’s story or  browse other ABS stories.

About this website

In 1993 when Evan was born we had never heard of Amniotic Band Syndrome. The Internet was just a baby at that time too and I didn’t know where to find the information I needed. I’ve learned a lot about ABS over the years so I developed this website to share this with others.

Keep in mind that I have no medical training. Please consult a medical professional for diagnosis and treatment recommendations.

Share your Story

Please, submit your story to add to the site and read and comment on the stories that others have contributed ~ it’s these personal stories that make this site special.

Robohand – 3D Printing Mechanical Hand for Amniotic Band Syndrome