Teens/Adult – their own stories

Childhood misconceptions

I was born in 1964, and my parents were not given a name or reason why my fingers were different. Here are some poignant stories related to my difference growing up:

As a child, I thought I wouldn’t be allowed to marry because I could not wear a wedding ring on my left ring finger.

I remember being uncomfortable at Thanksgiving, when the class would trace their hand to create a picture of a turkey. I never would.

In elementary school,

Read more Childhood misconceptions

My ABS Story

I was born in 1989 with ABS affecting both of my of hands and feet. I’m a few fingers and toes short of a set and the ones that I have come in a variety of shapes and sizes. I was incredibly lucky to receive top care from Sick Kids hospital in Toronto, Canada where I underwent numerous reconstructive surgeries to give me the best possible use of my hands and feet. I have had skin grafts and bone grafts and stitches and I came out relatively unscathed on the other side.

Read more My ABS Story

I have ABS.

When I was born, my left hand had no fingers, just nubs. My name is Kelsey. I am almost sixteen years old. After I was born the doctors did not really know what was exactly wrong with my hand. I was admitted to a children’s hospital as soon as a day old. I had a total of two surgeries. My first surgery was at the age two, they took bones out of my toes to put into my hand. I had to learn how to walk on my feet afterwards.

Read more I have ABS.

ABS toes

Hi, I’m 34 and have ABS involving just my toes. I grew up never knowing the cause, my parents were never told. They said it was because I stuck my feet through the amniotic bag and my toes were lost. As I got older I knew that wasn’t true and with the internet available I did my own research and finally know the cause is Amniotic Band Syndrome. I always hated my feet and do envy people who walk about in sandals.

Now I am less self-conscious but still won’t walk barefoot in public.

Read more ABS toes

Growing up with ABS – Sarah’s Story

Sarah born with ABS

My name is Sarah and I was born in 1998 with Amniotic Band Syndrome. It affects my fingers and toes, some of them are shorter and I have two bands on two of my fingers.

I’ve had more than several surgeries since I was born. My fingers were actually fused at birth and I had to undergo surgery to separate them. I also had surgeries to revise fingers and to remove bands and webbing.

During the 17 years I have been alive I haven’t had trouble with doing anything,

Read more Growing up with ABS – Sarah’s Story

Angelica’s ABS Story

Angelica

Hello, my name is Angelica I am 18 years old and I was born with ABS on my right hand. I don’t have any fingers on my right hand just little stubs. I’ve just learned the name as to the exact problem that I was born with. My entire life people have asked me what happened to me and my answer was always “I was just born like that” which is 100 % true but I guess there’s more to that.

I never felt different from anyone else until I hit middle school.

Read more Angelica’s ABS Story

Leah’s Words

My name is Leah. I’m 17 and I was born with only one hand. Due to this, I’m very dependent on my left hand. All my life I’ve been able to deal with having a disability until I’ve decided what I want to do with the rest of my life.

I’ve grown up with a construction background, and I’ve actually chosen plumbing & heating has a career choice for me. Pursuing this “dream” of mind has actually brought me down. I’ve always been the type of girl to show everyone off,

Read more Leah’s Words

The Greatest Gift I Have Been Given

In 1969 I was born missing my left arm from the elbow down and it has been the greatest gift I could ever imagine. Back then, doctors were not educated as to what caused this deformity so it wasn’t till I was married and my wife was expecting the birth of our first child that I became aware of what caused my condition.

I have had the privilege of using this “gift” to encourage and motivate others. Currently I travel across the nation speaking to students,

Read more The Greatest Gift I Have Been Given

My ABS Story

Amniotic Band Syndrome

I was born in 1998 with ABS on my middle finger on my left hand. My whole right hand, and both of my feet. I am 17 years old now. This is my story of my ABS experience. I’ve had multiple surgeries to make my fingers better to comfort myself and others.

I’ve always been bullied since elementary school because of them. I’ve had plenty of people tell me that “you’re beautiful no matter what” or “

Read more My ABS Story

Fern’s story

Close up picture of fingers affected by Amniotic Band Syndrome

My name is Fern Graham I am 17 years old and I was born with Amniotic Band Syndrome. When I was born I had a short middle finger on my right hand also the finger beside (ring finger) has a fused knuckle. I had a tiny wee strand of skin joining my middle finger to my ring finger that the doctor snipped. I have noticed now that I’m older I have bands round my leg that aren’t very noticeable unless you are looking in the right light.

Read more Fern’s story