ABS Stories | Teens/Adult – their own stories

Megan’s Story

Hello everyone! My name is Megan and I was born missing three fingers on my left hand, and also have a smaller palm on the affected side due to ABS. Fortunately, I have really good function in my hand and have had absolutely no trouble throughout life (I’m 30). The hardest part of this defect was dealing View Post

 View Post

My Life | Reyna’s story


Hi, my name is Reyna. I am 43 mother with 3 grown children and I have ABS. I never knew what my condition was called until today when I saw it on my medical history chart at the doctors. Let me start out by saying that I will most likely make a few people angry View Post

 View Post

My story: Oliver Leett

My name is Oliver Leett and I am a recently qualified PGA Professional at Ross on Wye Golf Club. I have been working with Head PGA Professional Tim Hall for just over a year and I am exited for the bright future ahead. I was born at Watford General Hospital in 1988 and I was View Post

 View Post

about Kim

I gave birth some 44 years ago. Her birth name, Kim. She was our first baby. I had never heard of amniotic band syndrome until Kim was born. It has been so long since giving it any thought at all. Happened to be discussing it at a party today. A guest mentioned that she had View Post

 View Post

This is my normal :)

I was born in a small town in Canada in 1983, and at the time, apparently nobody knew what to call my condition. It wasn’t until a few years ago that I stumbled on it on the internet, and was like, Oh my gosh, that’s ME! I was born with a club foot, and all View Post

 View Post

My ‘nother one’ hand

At 37 years old, I can finally say that I feel comfortable in my own skin, but this was not always the case. I was born with no left hand in 1976, but otherwise I was a healthy child. Growing up I often asked my parents why I was born that way but they had View Post

 View Post

My Father

Hello my name is Heather Page I am 32 years old. My father was born in 1944 with only one hand. For many years we were told it was a birth defect and that he lived a normal life. No answer were given nor name given of the birth defect until years down the road when we heard View Post

 View Post

Phalla’s ABS Story

I’ve lived with amniotic bands syndrome for 31 years. I was born with two thumbs, fingers fused together and a missing toe. I was born in a refugee camp in Thailand so unfortunately for me my parents have no medical records to share with me. We were sponsored to the US about a few months View Post

 View Post

Alyssa’s Story


My names Alyssa and I am 16 years old.  I have ABS towards my hands and feet. I live as much of a normal 16 year old life as I can I do sports and have a boyfriend, I’m a junior in high-school, and now have my permit to drive. When I was younger every year or View Post

 View Post

Amniotic Band Sydrome = my fingers & toes


… and I wouldn’t trade them for anything in the world. I was born with ABS, I’ve never really understood exactly what it was till now. Of course anyone can Google it and when I did I realized just how lucky I was that it only affected my fingers and toes. It truly is amazing View Post

 View Post