ABS Stories | Teens/Adult – their own stories

Leah’s Words

My name is Leah. I’m 17 and I was born with only one hand. Due to this, I’m very dependent on my left hand. All my life I’ve been able to deal with having a disability until I’ve decided what I want to do with the rest of my life. I’ve grown up with a View Post

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The Greatest Gift I Have Been Given

In 1969 I was born missing my left arm from the elbow down and it has been the greatest gift I could ever imagine. Back then, doctors were not educated as to what caused this deformity so it wasn’t till I was married and my wife was expecting the birth of our first child that View Post

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My ABS Story

Amniotic Band Syndrome

I was born in 1998 with ABS on my middle finger on my left hand. My whole right hand, and both of my feet. I am 17 years old now. This is my story of my ABS experience. I’ve had multiple surgeries to make my fingers better to comfort myself and others. I’ve always been bullied since View Post

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Fern’s story

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My name is Fern Graham I am 17 years old and I was born with Amniotic Band Syndrome. When I was born I had a short middle finger on my right hand also the finger beside (ring finger) has a fused knuckle. I had a tiny wee strand of skin joining my middle finger to View Post

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My story – Johannes

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My name is Johannes and I am from Munich, Germany. I was born in 1979 with ABS. My both hands, my left foot and one toe of my right foot are affected. Shortly after my birth, I almost lost my left foot. Nearly all fingers on my both hands were grown together. A doctor (now View Post

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Was told it was how you was born

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Hi all I’m Paul. I was born in the UK in 1971 with abs affecting my hands and feet badly, after many surgeries through out my childhood I never seemed to be told the full story by my family. Earlier this year I decided to find out more and started a Google search looking at View Post

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A Blessing in Disguise

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Today I saw a photo and article in Parade magazine about the marvels of 3D printing. I read about a young girl’s condition called amniotic band syndrome. I realize that this is what happened to me! I was born in 1955 with nubs for fingers on my left hand and rings around my toes and my right leg was View Post

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Circa 1965

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I was born in 1965 with no fingers on my left hand. My whole life no one has been able to explain why this was. Now I know. In 1965 this wasn’t heard of. The hospital didn’t want to let me go, they wanted to run tests and figure it out.  As a child, I View Post

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born with ABS in 1949

 I was born in September, 1949.  At my birth, I had the high webbing between all of my fingers and toes.  The digits affects and how are:~On my left hand, my pinky and ring fingers are missing after the first joint, my middle finger has most of the tip missing, and my index finger is View Post

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Chapin’s ABS journey

Chapin

Our son Chapin was born on June 16, 1992 in Washington DC. He was our first child and I had a normal pregnancy (with the exception of some light vaginal bleeding at 8 weeks, but my OB-GYN was not concerned). When he was born four days after his due date, the nurses performing the APGAR View Post

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