My pregnancy was like any other pregnancy until my 20-week anatomy scan. We found out that our baby boy had Amniotic Band Syndrome and would have only half a portion of his right arm and a full left arm. I, like many others, had no idea what amniotic band syndrome was and had never met anybody else with it.
I was initially sad, fearing the torment and all the things he would not be able to do. Of course, everyone who is not going through it has encouraging words, which I appreciate but I wanted to hear it from the people who were in the trenches with us. Anyway, that helped us to give him the perfect name. Lejen (Legend). He will be great just like all the other people who are born with this “condition” not “illness” or “disability”. I just want to encourage the world to gain awareness and tell a friend of a friend!