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Recent Stories
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Colton’s story
This story is about my little boy, Colton. When I was 20 weeks pregnant, my doctor
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The Girl Who Got Stronger
My name is Samantha Bullock and I’m 16 years old. I have amniotic band syndrome in my fingers.
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Sergio’s ABS story
My son Sergio was born 06/20/2000 with ABS syndrome. At the time that he was born I had
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Colton’s story
Join the ABS Group
My grandson Lucas was born on with a cleft lip and palate with 3 of his middle left fingers ‘banded’ and missing big toe on left side. I am glad my daughter was told that he has ABS as I think it is good to understand the syndrome and make sense of it. He has already been seen by the hospital treating him and the cleft specialist team have extremely supportive. This little one will always be encouraged to focus on the things he can do as opposed to those he finds difficult. My daughter and her partner knew about his cleft but not about the fingers and toes. They are awaiting the results of further tests and have bonded beautifully with him. I am hoping to learn more now that I can be a part of this support group. Thank you. Bunty
I hope this information is useful.
Please see site to get details of mechanical hands for missing fingers.
http://www.indiegogo.com/projects/robohand
http://www.robohand.blogspot.com/
https://www.facebook.com/pages/Robohand/260864887366912?hc_location=stream
I was born in Wausau, WI in 1968. My parents took me to Twin Cities for 3 surgeries. I have deformed hands and left foot. I did not know that the birth defects had a name ABS. I found out on my ten year wedding anniversary when a 16 year old lifeguard at a waterpark stopped me and asked to hear my story and he shared his. I was 31 years old and had met someone like me for the first time.
Having not lost fingers and toes I have never known anything else. When you have a loving family and support your life and outlook is what you make of it. I love the life I have!!!!
Hi, I am reading all the encouraging words while siting in the waiting lounge , and my wife is in the recovery room with my 1 year old daughter Ishanvi who has just gone through her second surgery. Every word on this website is helping me with what and how to give support to my daughter. Ishanvi has a twin sister and there is no trace of any ABS on her. I know , both my girls will go along each other very well. What i need is some help on how did your kids managed to deny credit to people making comments on the situation..
My best advice is to instill confidence in your daughter. Teach her not to hide her birth differences. Explain to other people about ABS and model for her how to educate other people. I believe that kids tease when they don’t understand and are made uncomfortable. All the best, Ruth
my beautiful daughter was born with ABS affecting her right hand and both legs.she doesn’t have right arm and both legs above knee.she is three years old now.i want her full story to be shared on your website.
My first born, Lamar was born August 2, 2008 with ABS affecting his left leg below the knee that his leg self amputated in utero. Now at 4 years old all I can say is that it could of been worse so I have no regrets and I realize now that me not knowing he had lost his leg made the pregnancy less stressful as he was already born premature at 32 weeks. Lamar has no fear and prefers to be free without his prosthetic leg, when others look at him he asks me ‘mom what are they looking at’ I tell him ‘baby when people stare at you just smile’ and he does. Each ABS kid on this website is strong and beautiful in every way and their fearlessness gives us courage that they will grow up loving themselves just as they are.
AHHHH! The entire guestbook has been lost. All the wonderful entries from the past ten years are gone. I welcome your entries as we start this up again.