Stories

Childhood misconceptions

I was born in 1964, and my parents were not given a name or reason why my fingers were different. Here are some poignant stories related to my difference growing up:

As a child, I thought I wouldn’t be allowed to marry because I could not wear a wedding ring on my left ring finger.

I remember being uncomfortable at Thanksgiving, when the class would trace their hand to create a picture of a turkey. I never would.

In elementary school,

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My ABS Story

I was born in 1989 with ABS affecting both of my of hands and feet. I’m a few fingers and toes short of a set and the ones that I have come in a variety of shapes and sizes. I was incredibly lucky to receive top care from Sick Kids hospital in Toronto, Canada where I underwent numerous reconstructive surgeries to give me the best possible use of my hands and feet. I have had skin grafts and bone grafts and stitches and I came out relatively unscathed on the other side.

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Isaac’s Nibs

ABS nibs

Shortly after my twins were born, my husband walked my son over to my recovery bed (I had a C-section) with a stunned look on his face and said, ‘Look at this.’ He peeled Isaac’s hand open to reveal a strange looking little left hand. My husband was the first to notice the anomaly, despite having nearly a dozen medical professionals involved in the twins’ delivery.

We were shocked and upset. We silently and immediately began to question all the things he wouldn’t be able to do without 4 functioning fingers.

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Mr. Right Hand

Ahmiir

Hello my name is Crystal and I am the mother to two healthy baby boys, 8 year old Naziir and 8 month old Ahmiir born on July 12, 2016. Both of my pregnancies were very normal both boys were delivered by C-section. I was healthy and active before my kids were born. While pregnant with Ahmiir, all of my scans were normal no problem with the baby was detected so it was a total surprise to all of us, including the doctor, when this little guy came out missing his left hand.

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Jay’s Story

Hello! My name is Taylor, and I’m Jay’s mother. In November 2015 I found out I was pregnant. We were excited and anxious like most first time parents are. We found out (early) that we were having a little boy! We had a pretty uneventful pregnancy up until our anatomy scan. At our anatomy scan we were told they found an extra membrane near our baby boys head and referred us to a specialist. We met with the specialist who told us he had Amniotic Band Syndrome.

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I have ABS.

When I was born, my left hand had no fingers, just nubs. My name is Kelsey. I am almost sixteen years old. After I was born the doctors did not really know what was exactly wrong with my hand. I was admitted to a children’s hospital as soon as a day old. I had a total of two surgeries. My first surgery was at the age two, they took bones out of my toes to put into my hand. I had to learn how to walk on my feet afterwards.

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ABS toes

Hi, I’m 34 and have ABS involving just my toes. I grew up never knowing the cause, my parents were never told. They said it was because I stuck my feet through the amniotic bag and my toes were lost. As I got older I knew that wasn’t true and with the internet available I did my own research and finally know the cause is Amniotic Band Syndrome. I always hated my feet and do envy people who walk about in sandals.

Now I am less self-conscious but still won’t walk barefoot in public.

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Sophia’s Story

We had a 20-week ultrasound done and they found a two vessel cord and we were sent to a specialist to make sure that there was nothing more abnormal that they weren’t seeing. When we saw the specialist they noticed that our little girl’s fingers were not separating and they could not see all the toes on her left foot and no toes on the right. We were told that we just needed to wait until she was born to really determine what was going on as the ultrasounds couldn’t really tell us everything.

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Oliver’s Journey

Oliver's Birth story

My son, Oliver was due on 6/11/15. Our pregnancy got complicated around 18 weeks, when the amniotic banding was first detected in an ultrasound. From then on, my husband and I were warned to be prepared for our son to be born with a missing limb and the fact that my amniotic sac had been “weakened” so my water could break at any time starting at 18 weeks.

We went to weekly or biweekly ultrasounds and they tried to monitor where the banding was,

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I’m Still Lejendary

My pregnancy was like any other pregnancy until my 20-week anatomy scan. We found out that our baby boy had Amniotic Band Syndrome and would have only half a portion of his right arm and a full left arm. I, like many others, had no idea what amniotic band syndrome was and had never met anybody else with it.

I was initially sad, fearing the torment and all the things he would not be able to do. Of course, everyone who is not going through it has encouraging words,

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