Kai’s story- Fetal surgery at 19 weeks

In Burmese the name Kai means “unbreakable.” This is a definitely a story about a little baby boy that refused to submit to defeat. He truly is unbreakable. The Beginning of Our Whirlwind Journey My husband Rory and I went into the Millcreek Imaging Center to get the ultrasound of all ultrasounds, the one which View Post

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Oliver’s Story

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My son Oliver was born on February 21, 2014 after a long pregnancy where they decided to take him a week early since he was big. Born at 9lbs and 21.5 inches long! After the c-section they wrapped him up and gave him to my husband. When I got to see him my husband had View Post

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My story – Johannes

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My name is Johannes and I am from Munich, Germany. I was born in 1979 with ABS. My both hands, my left foot and one toe of my right foot are affected. Shortly after my birth, I almost lost my left foot. Nearly all fingers on my both hands were grown together. A doctor (now View Post

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A grandmother’s love for her granddaughter Kajinee.

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I just want to say I’m very blessed to have experienced the birth of my now 5 yrs old granddaughter Kajinee. My daughter was told from her doctors about her baby left hand. She said to be mommy I didn’t care it’s just her hand. So she delivered her baby girl. She was 4.5lbs so View Post

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Daniel’s Story – Mommy’s Champion

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I have a 7 year old son name Daniel, he was born at 35 weeks with ABS. He has a clubfeet, webbed and short fingers on his right hand, his left hand has only 3 fingers, he was also born with a cleft lip and palate along with a open on his face causing his View Post

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Janessa’s Story

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My baby girl was born 1 week late… on 8-01-2014. I went in already dilated 4 cm … after 7 hrs of labor my baby was born. When I saw the midwife pulling her out and handing her to the nurse I noticed something was wrong with one hand… I asked my husband to look View Post

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my baby boy – Alexzander’s Story

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Alexzander was born on Sept 15th, 2014 my birthday as well. Up until delivery all we knew was we were having a healthy baby boy. Alex was taken by c-section @ 312am. He was beautiful and perfect. They immediately took him over to the table and cleaned him up. The nurses showed his father and View Post

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Harris’ heroes

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I had never heard of ABS before. I never had the need to know what it was, how it happened and why until we had our son, Harris. Harris was born on 30th May 2014, exactly 3 weeks early, at 2.15am after 6 hours of active labour. My fiancé, James and I had agreed that View Post

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Was told it was how you was born

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Hi all I’m Paul. I was born in the UK in 1971 with abs affecting my hands and feet badly, after many surgeries through out my childhood I never seemed to be told the full story by my family. Earlier this year I decided to find out more and started a Google search looking at View Post

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Amelia’s Story

I had never heard of ABS until I read the article on CNN website. My daughter Amelia “Millie” was born on July 8th, 2013. The doctor came over to us and told us that on her left hand she had 2 fingers that were smaller and on her left foot 3 toes that were smaller. View Post

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