my baby boy – Alexzander’s Story

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Alexzander was born on Sept 15th, 2014 my birthday as well. Up until delivery all we knew was we were having a healthy baby boy. Alex was taken by c-section @ 312am. He was beautiful and perfect. They immediately took him over to the table and cleaned him up. The nurses showed his father and View Post

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Harris’ heroes

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I had never heard of ABS before. I never had the need to know what it was, how it happened and why until we had our son, Harris. Harris was born on 30th May 2014, exactly 3 weeks early, at 2.15am after 6 hours of active labour. My fiancé, James and I had agreed that View Post

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Was told it was how you was born

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Hi all I’m Paul. I was born in the UK in 1971 with abs affecting my hands and feet badly, after many surgeries through out my childhood I never seemed to be told the full story by my family. Earlier this year I decided to find out more and started a Google search looking at View Post

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Amelia’s Story

I had never heard of ABS until I read the article on CNN website. My daughter Amelia “Millie” was born on July 8th, 2013. The doctor came over to us and told us that on her left hand she had 2 fingers that were smaller and on her left foot 3 toes that were smaller. View Post

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A Blessing in Disguise

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Today I saw a photo and article in Parade magazine about the marvels of 3D printing. I read about a young girl’s condition called amniotic band syndrome. I realize that this is what happened to me! I was born in 1955 with nubs for fingers on my left hand and rings around my toes and my right leg was View Post

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Victoria’s ABS Story

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I found out about my daughter Victoria’s condition while still pregnant during a routine sonogram at my local hospital. The findings were submitted to a hospital that specializes with the kind of deformities they had found. I got a call from the “other” hospital, explaining that they had found they couldn’t detect her left leg View Post

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Circa 1965

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I was born in 1965 with no fingers on my left hand. My whole life no one has been able to explain why this was. Now I know. In 1965 this wasn’t heard of. The hospital didn’t want to let me go, they wanted to run tests and figure it out.  As a child, I View Post

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Hannah’s Hand Saved Her Life

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Without warning she got up, mumbled something indiscernible under her breath and left the room without so much as turning on the lights. She had been stoic throughout the process. The absolute opposite of the nurse who usually took our sonograms I figured this nurse needed to use the restroom. Nothing to fret. I checked View Post

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born with ABS in 1949

 I was born in September, 1949.  At my birth, I had the high webbing between all of my fingers and toes.  The digits affects and how are:~On my left hand, my pinky and ring fingers are missing after the first joint, my middle finger has most of the tip missing, and my index finger is View Post

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My Son Ethan’s ABS Story

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Ethan was born 3 weeks late and I had to be induced. I gave birth on the 18th of February 2011 at 7:00am at Baines avenue clinic in Harare. I didn’t even notice until they had cleaned him up that he had a missing left foot, with just the heel present. At first I was View Post

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