Hi, I’m 34 and have ABS involving just my toes. I grew up never knowing the cause, my parents were never told. They said it was because I stuck my feet through the amniotic bag and my toes were lost. As I got older I knew that wasn’t true and with the internet available I did my own research and finally know the cause is Amniotic Band Syndrome. I always hated my feet and do envy people who walk about in sandals.
Now I am less self-conscious but still won’t walk barefoot in public.
… Read more ABS toes
We had a 20-week ultrasound done and they found a two vessel cord and we were sent to a specialist to make sure that there was nothing more abnormal that they weren’t seeing. When we saw the specialist they noticed that our little girl’s fingers were not separating and they could not see all the toes on her left foot and no toes on the right. We were told that we just needed to wait until she was born to really determine what was going on as the ultrasounds couldn’t really tell us everything.
… Read more Sophia’s Story
My son, Oliver was due on 6/11/15. Our pregnancy got complicated around 18 weeks, when the amniotic banding was first detected in an ultrasound. From then on, my husband and I were warned to be prepared for our son to be born with a missing limb and the fact that my amniotic sac had been “weakened” so my water could break at any time starting at 18 weeks.
We went to weekly or biweekly ultrasounds and they tried to monitor where the banding was,
… Read more Oliver’s Journey
My pregnancy was like any other pregnancy until my 20-week anatomy scan. We found out that our baby boy had Amniotic Band Syndrome and would have only half a portion of his right arm and a full left arm. I, like many others, had no idea what amniotic band syndrome was and had never met anybody else with it.
I was initially sad, fearing the torment and all the things he would not be able to do. Of course, everyone who is not going through it has encouraging words,
… Read more I’m Still Lejendary
After trying to conceive for over 6 years, my husband and I found out in October 2015 we were finally expecting. This was the happiest day of our lives thankfully our prayers had finally been answered. We followed every doctors appointment with extreme excitement hearing our blessings heart beat and seeing them in many ultrasounds but all of that changed on Feb 6th, 2016.
We went eagerly to our 20-week anatomy scan hoping to find out if we would be having a beautiful baby girl or handsome baby boy.
… Read more Mommy Of An Angel
This is my baby Kyren, he was born without his left hand. When I went in for my 20 week ultrasound I was told there was something wrong with him. I went to several different doctors and had multiple tests and ultrasounds done, after all those I was told his left arm didn’t develop all the way and he would be born without his hand. I was so worried and scared.
Once he was born, the moment I laid my eyes on him I saw no imperfections whatsoever he is perfect.
… Read more My son Kyren
He was born without feet and missing some digits on his hands. Elijah is growing up in a baby house with other younger children with a variety of special needs. If Elijah were born in a loving family he would thrive and grow up to live a full life, never seeing what makes him special as a disability or a limitation. His caretakers at the orphanage take good care of his needs but nothing compared to what he could receive in a family.
… Read more Elijah needs a family
On May 23, 2015 our sixth child, Fallon, was born extremely premature. She graced us with her presence at only 25 weeks gestation. Her birth was a traumatic one requiring an emergency c section under general anesthesia. They had her delivered in only a minute. Upon inspection of the newborn it was discovered that there was a large lactation on her foot. It was originally believed she was cut during the crash surgery.
The degree and type of cut lead to the diagnosis of amniotic band syndrome.
… Read more Saving Fallon’s foot
Johnny was born with Tracheal Esophageal Fistula (TEF) and with amniotic band restriction on some digits on his hands and feet. We consider him lucky as ABS could have affected whole limbs.
Compared to the TEF the ABS seems like nothing, only cosmetic — Johnny is perfect in our eyes. As Johnny gets older other kids are starting to ask about his fingers and toes and they are pointing it out to him.
John and I can only hope to instill in him the importance of what’s on the inside and that everybody is different and should never be judged by the outside.
… Read more John Anthony Eddy
My name is Sarah and I was born in 1998 with Amniotic Band Syndrome. It affects my fingers and toes, some of them are shorter and I have two bands on two of my fingers.
I’ve had more than several surgeries since I was born. My fingers were actually fused at birth and I had to undergo surgery to separate them. I also had surgeries to revise fingers and to remove bands and webbing.
During the 17 years I have been alive I haven’t had trouble with doing anything,
… Read more Growing up with ABS – Sarah’s Story