My name is Marissa, I am 29 years old. I learned to do everything as any other child and now I can talk with others like myself who have these limb differences. There is no glory for myself, it was God who whispered in my ear not to lose hope that it would all come full circle and make sense.
Self-pity, resentment, depression – I would say are the chains that come with these hand, feet or any other limb differences always at different stages of your life.
… Read more My life with Amniotic Band Syndrome
I was born in 2003 with deformed toes on my left foot and partially deformed toes on my right foot due to ABS.
As a child, I was bullied and was very insecure about my “defect,” even though I could move just as well as a normal person could. When I was in second grade, I told myself I could never wear open-toed shoes outside and would be forced to keep my toes a secret or I would never get friends or a boyfriend.
… Read more My ABS Story
I was born in 1964, and my parents were not given a name or reason why my fingers were different. Here are some poignant stories related to my difference growing up:
As a child, I thought I wouldn’t be allowed to marry because I could not wear a wedding ring on my left ring finger.
I remember being uncomfortable at Thanksgiving, when the class would trace their hand to create a picture of a turkey. I never would.
In elementary school,
… Read more Childhood misconceptions
I was born in 1989 with ABS affecting both of my of hands and feet. I’m a few fingers and toes short of a set and the ones that I have come in a variety of shapes and sizes. I was incredibly lucky to receive top care from Sick Kids hospital in Toronto, Canada where I underwent numerous reconstructive surgeries to give me the best possible use of my hands and feet. I have had skin grafts and bone grafts and stitches and I came out relatively unscathed on the other side.
… Read more My ABS Story
When I was born, my left hand had no fingers, just nubs. My name is Kelsey. I am almost sixteen years old. After I was born the doctors did not really know what was exactly wrong with my hand. I was admitted to a children’s hospital as soon as a day old. I had a total of two surgeries. My first surgery was at the age two, they took bones out of my toes to put into my hand. I had to learn how to walk on my feet afterwards.
… Read more I have ABS.
Hi, I’m 34 and have ABS involving just my toes. I grew up never knowing the cause, my parents were never told. They said it was because I stuck my feet through the amniotic bag and my toes were lost. As I got older I knew that wasn’t true and with the internet available I did my own research and finally know the cause is Amniotic Band Syndrome. I always hated my feet and do envy people who walk about in sandals.
Now I am less self-conscious but still won’t walk barefoot in public.
… Read more ABS toes
My name is Sarah and I was born in 1998 with Amniotic Band Syndrome. It affects my fingers and toes, some of them are shorter and I have two bands on two of my fingers.
I’ve had more than several surgeries since I was born. My fingers were actually fused at birth and I had to undergo surgery to separate them. I also had surgeries to revise fingers and to remove bands and webbing.
During the 17 years I have been alive I haven’t had trouble with doing anything,
… Read more Growing up with ABS – Sarah’s Story
Hello, my name is Angelica I am 18 years old and I was born with ABS on my right hand. I don’t have any fingers on my right hand just little stubs. I’ve just learned the name as to the exact problem that I was born with. My entire life people have asked me what happened to me and my answer was always “I was just born like that” which is 100 % true but I guess there’s more to that.
I never felt different from anyone else until I hit middle school.
… Read more Angelica’s ABS Story
My name is Leah. I’m 17 and I was born with only one hand. Due to this, I’m very dependent on my left hand. All my life I’ve been able to deal with having a disability until I’ve decided what I want to do with the rest of my life.
I’ve grown up with a construction background, and I’ve actually chosen plumbing & heating has a career choice for me. Pursuing this “dream” of mind has actually brought me down. I’ve always been the type of girl to show everyone off,
… Read more Leah’s Words
In 1969 I was born missing my left arm from the elbow down and it has been the greatest gift I could ever imagine. Back then, doctors were not educated as to what caused this deformity so it wasn’t till I was married and my wife was expecting the birth of our first child that I became aware of what caused my condition.
I have had the privilege of using this “gift” to encourage and motivate others. Currently I travel across the nation speaking to students,
… Read more The Greatest Gift I Have Been Given