Teens/Adult – their own stories

My life with Accidental Amniotic Band Syndrome

Although this condition can happen naturally, mine was a bit of a screw-up. For those of you who don’t know, Amniotic Band Syndrome is a condition where the bands of tissue surrounding the baby become entangled with the baby. This cuts off circulation to parts of the body such as fingers and toes which results in the limbs dying, not growing, or being squeezed off. There are some situations where the bands can wrap around the neck or other parts of the body and become fatal.

Read more My life with Accidental Amniotic Band Syndrome

My Story of ABS

I was born with ABS in August of 1995. Doctors confirmed the ABS on my hands and one foot, as well as a cleft lip and palate, and a brain disorder called hydrocephalus. My right hand had all four fingers squished together, my right foot had the first three toes formed together. My right ankle and the index and ring fingers of my left hand both showed signs of constriction but did not impair me.

I have experienced several surgeries as a result of all of these medical problems.

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We are in this together!!

Hello, my name is Tia. I am 23 years old, and I was also born with Amniotic Band syndrome. Which affected some of my fingers on both hands, two bands that affected both of my legs right above my ankles and two toes on my right foot. I’m just writing to you all to let you know even though we are born different we are special, we are relentless, and we should be proud of who we are.

On a personal note,

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All Grown Up

My son, Anthony, was born 2/9/1995 with ABS that had cut off growth of some of his toes on both feet. He has only nubs of toes (with no bone) for a big toe on one foot but the other foot he has a big toe. Both feet have middle toes that were wrapped with bands that caused toes to either not form at all or only somewhat.

The amazing thing is, the day he was born, the doctors held him up by his fingers and let his feet touch the table and held him to walk.

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My story

I’m 12, I’ve lived with amniotic band Syndrome all my life. I found out that it was called ABS about two years ago. I live in the uk, Wolverhampton and every-time I wanted a prophetic or needed an operation or I had a ache in that area, I always hand to go to Birmingham. The uk never knew about what to do. Birmingham was the place where I learned to tie my laces, I leaned how to write properly, I saw other people with disabilities,

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God Knows Best

I was born in 1955 In Birmingham, Alabama. I grew up up with four fingers malformed and never new that I had anything wrong with my hand. I played every sport I could play football, basketball, baseball, wrestling without ever feeling held back by my hand. I was left handed so that solved some problems such as writing and throwing a ball.

In the teenager years I was embarrassed at times for people to see my hand and did get some looks when I would shake hands being a gentleman or when accepting a congratulatory handshake.

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My Story

In 1957, when I was born, my parents were told that I was crippled, a bad seed, that I would never walk and probably have brain damage. They were told to put me in a home and forget about me. Why? Because I was born with 2 fingers on my left hand, 4 toes on my left foot (which was also clubbed) and my right foot is just a stub with a small toe on it.

My parents did just the opposite!

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My life with Amniotic Band Syndrome

My name is Marissa, I am 29 years old. I learned to do everything as any other child and now I can talk with others like myself who have these limb differences. There is no glory for myself, it was God who whispered in my ear not to lose hope that it would all come full circle and make sense.

Self-pity, resentment, depression – I would say are the chains that come with these hand, feet or any other limb differences always at different stages of your life.

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My ABS Story

I was born in 2003 with deformed toes on my left foot and partially deformed toes on my right foot due to ABS.

As a child, I was bullied and was very insecure about my “defect,” even though I could move just as well as a normal person could. When I was in second grade, I told myself I could never wear open-toed shoes outside and would be forced to keep my toes a secret or I would never get friends or a boyfriend.

Read more My ABS Story

Childhood misconceptions

I was born in 1964, and my parents were not given a name or reason why my fingers were different. Here are some poignant stories related to my difference growing up:

As a child, I thought I wouldn’t be allowed to marry because I could not wear a wedding ring on my left ring finger.

I remember being uncomfortable at Thanksgiving, when the class would trace their hand to create a picture of a turkey. I never would.

In elementary school,

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