My names Alyssa and I am 16 years old. I have ABS towards my hands and feet. I live as much of a normal 16 year old life as I can I do sports and have a boyfriend, I’m a junior in high-school, and now have my permit to drive.
When I was younger every year or so I had to go to Shriners Hospital to get blood work done on my feet, the hands were less of a concern. The doctors a first thought id never walk due to the severity of the toes, but as the years went on I played as a normal kid in the yard. I now do Track and Field, Field Hockey, and run on Cross country.
Its not easy explaining to people that I have ABS especially little kids who don’t understand how it happened. High-school kids are not much easier either. It’s a little more reassuring that I am not the only person who has ABS.