Hi! My name is Christy and I was born with Amniotic Band Syndrome. It affected my fingers and toes. All of them are deformed, only my pinkies and thumbs look to be normal, with scarring around them all.
I’ve had at least 13 surgeries in my lifetime, but I hardly remember any of them. I believe I was 7 at my last surgery and then my parents let me decide whether or not I wanted any more. I told them no. I like the way I am.
Currently, I am married with a child. In high school I played the violin, the drums, and was even a very great volleyball player. I got First Team All District my junior year. I have had a few kids question me about my fingers and toes but I have never taken offense. Growing up I was taught that it is okay to be different. Instead of being ashamed of my deformities, I embraced them. I was never really picked on in school, except for once in grade school. We were playing kick ball and I failed to catch the game winning kick, meaning my team lost. This boy Bryan called me butter fingers and a few days later he apologized.
I have been very lucky to be raised the way I was and I moved around a lot because my father was in the army. I want to say that amniotic band syndrome is not always as bad as it seems. 🙂
That is awesome! 🙂 and yes it is! Everytime I see someone with ABS, I get all excited! It’s more common than I thought 🙂
Hi(: I to was born with abs and I also play basketball, volleyball and the violin like you! I also play the piano and the string bass (: I am now just learning what I have and it’s great to know other people are out there just like me 🙂