Teens/Adult – their own stories

Leah’s Words

My name is Leah. I’m 17 and I was born with only one hand. Due to this, I’m very dependent on my left hand. All my life I’ve been able to deal with having a disability until I’ve decided what I want to do with the rest of my life.

I’ve grown up with a construction background, and I’ve actually chosen plumbing & heating has a career choice for me. Pursuing this “dream” of mind has actually brought me down. I’ve always been the type of girl to show everyone off,

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The Greatest Gift I Have Been Given

In 1969 I was born missing my left arm from the elbow down and it has been the greatest gift I could ever imagine. Back then, doctors were not educated as to what caused this deformity so it wasn’t till I was married and my wife was expecting the birth of our first child that I became aware of what caused my condition.

I have had the privilege of using this “gift” to encourage and motivate others. Currently I travel across the nation speaking to students,

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My ABS Story

Amniotic Band Syndrome

I was born in 1998 with ABS on my middle finger on my left hand. My whole right hand, and both of my feet. I am 17 years old now. This is my story of my ABS experience. I’ve had multiple surgeries to make my fingers better to comfort myself and others.

I’ve always been bullied since elementary school because of them. I’ve had plenty of people tell me that “you’re beautiful no matter what” or “

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Fern’s story

Close up picture of fingers affected by Amniotic Band Syndrome

My name is Fern Graham I am 17 years old and I was born with Amniotic Band Syndrome. When I was born I had a short middle finger on my right hand also the finger beside (ring finger) has a fused knuckle. I had a tiny wee strand of skin joining my middle finger to my ring finger that the doctor snipped. I have noticed now that I’m older I have bands round my leg that aren’t very noticeable unless you are looking in the right light.

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My story – Johannes

My name is Johannes and I am from Munich, Germany. I was born in 1979 with ABS. My both hands, my left foot and one toe of my right foot are affected. Shortly after my birth, I almost lost my left foot. Nearly all fingers on my both hands were grown together. A doctor (now a respected doctor in the field of plastic surgery) of the university hospital in Munich “Klinikum Rechts der Isar” operated my fingers on both hands and left foot.

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Was told it was how you was born

Hi all I’m Paul. I was born in the UK in 1971 with abs affecting my hands and feet badly, after many surgeries through out my childhood I never seemed to be told the full story by my family.

Earlier this year I decided to find out more and started a Google search looking at hand and feet defects from birth and stumbled across amniotic band syndrome and wow what a massive slap around the face it was I was discovering a huge network of people out there in the world I never knew. 

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A Blessing in Disguise

Today I saw a photo and article in Parade magazine about the marvels of 3D printing. I read about a young girl’s condition called amniotic band syndrome. I realize that this is what happened to me!

I was born in 1955 with nubs for fingers on my left hand and rings around my toes and my right leg was twisted backwards at birth. I remember  hearing something about bands but never knew the name of the condition and I am almost 60 years old!

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Circa 1965

I was born in 1965 with no fingers on my left hand. My whole life no one has been able to explain why this was. Now I know. In 1965 this wasn’t heard of. The hospital didn’t want to let me go, they wanted to run tests and figure it out.  As a child, I was made fun of and even my own parents didn’t think I could ever do anything. Today, I am a respiratory therapist. I had to invent a device to be able to intubate people because I couldn’t graduate without being able to.

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born with ABS in 1949

 I was born in September, 1949.  At my birth, I had the high webbing between all of my fingers and toes.  The digits affects and how are:
~On my left hand, my pinky and ring fingers are missing after the first joint, my middle finger has most of the tip missing, and my index finger is missing at just before the last joint.
~The index, middle and ring fingers of my right hand were fused together, but the doctor separated the index and middle fingers at birth. 

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Chapin’s ABS journey

Our son Chapin was born on June 16, 1992 in Washington DC. He was our first child and I had a normal pregnancy (with the exception of some light vaginal bleeding at 8 weeks, but my OB-GYN was not concerned). When he was born four days after his due date, the nurses performing the APGAR were the first to notice his small hands and short fingers on both hands.

Our doctor told us this was a result of Amniotic Band Syndrome.

Read more Chapin’s ABS journey