Teens/Adult – their own stories

My ‘nother one’ hand

At 37 years old, I can finally say that I feel comfortable in my own skin, but this was not always the case. I was born with no left hand in 1976, but otherwise I was a healthy child. Growing up I often asked my parents why I was born that way but they had no answers for me since they were never given proper answers either. At the time there was a prenatal drug that pregnant women were given that was blamed for such birth defects but my mother never took those so that was not the reason.

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My Father

Hello my name is Heather Page I am 32 years old. My father was born in 1944 with only one hand. For many years we were told it was a birth defect and that he lived a normal life. No answer were given nor name given of the birth defect until years down the road when we heard the term ABS.

Growing up my father was made fun of and picked on. He grew up in Texas and when he was old enough he applied for the military and was denied due to the fact he was handicapped.

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Phalla’s ABS Story

I’ve lived with amniotic bands syndrome for 31 years. I was born with two thumbs, fingers fused together and a missing toe.

I was born in a refugee camp in Thailand so unfortunately for me my parents have no medical records to share with me. We were sponsored to the US about a few months after I was born. I was told I was in and out of the UC Davis hospital but I honestly don’t remember going through any of the procedures/surgeries.

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Alyssa’s Story

My names Alyssa and I am 16 years old.  I have ABS towards my hands and feet. I live as much of a normal 16 year old life as I can I do sports and have a boyfriend, I’m a junior in high-school, and now have my permit to drive.

When I was younger every year or so I had to go to Shriners Hospital to get blood work done on my feet, the hands were less of a concern. The doctors a first thought id never walk due to the severity of the toes,

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Amniotic Band Sydrome = my fingers & toes

… and I wouldn’t trade them for anything in the world.

I was born with ABS, I’ve never really understood exactly what it was till now. Of course anyone can Google it and when I did I realized just how lucky I was that it only affected my fingers and toes. It truly is amazing how unique they are! (:

I’ve had several surgeries since I was 6 months old and each and every time I’ve learned to love my fingers and toes more and more.

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Stuart’s Story: 32 years and counting…

The following is a blog I first posted back in 2010. It’s still the only time I’ve put pen to paper and really opened up about my experiences with ABS. Since then I’ve read so many stories from parents about their kids being awesome; it’s through family support that you realise you’re just as important to society as everyone else.

Stuart

I’ve recently joined up to an ABS support group on Facebook. Surprisingly enough, it’s not the kind of ABS that Clarkson,

Read more Stuart’s Story: 32 years and counting…

The Girl Who Got Stronger

My name is Samantha Bullock and I’m 16 years old. I have amniotic band syndrome in my fingers. I also have clubbed feet. When my mother was pregnant, she fell and the door knob hit her in the back. She had no idea that it had done anything to me until I was born. She told me that she cried because she knew I would have problems with walking and doing anything that a normal human being could do. In school I went through physical education and my teachers helped me accomplish everything I could.

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Kayla’s Story

My name is Kayla, and I was born with ABS. I am missing 3 fingers on my right hand and a big toe on my right foot. My left foot has a band wrapped around it. The hardest thing about ABS is being in pain all the time, getting made fun of for something you can’t help, having doctors tell you that you’ll be confined to a wheelchair for the rest of your life. Even though some people say I can’t do this,

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Abby’s story

Hi! My name is Abby and I’m 13 years old. I was born with ABS on my left hand and my right foot. On my left hand, my index finger is a little nub. The rest of my fingers are full, but the skin looks kind of weird. It isn’t too noticeable. On my right foot, my big toe is a nub. The rest of my toes are perfectly fine.

My mom always tells me that when she found out I had ABS,

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Sarah’s ABS Story

I’m Sarah, 14 years ago, on the 1st of May, I was born in Sydney Australia. Amniotic Band Syndrome has cause for me to lose most of my forearm. From what my mother has told me, about 26 weeks into the pregnancy, I was diagnosed with ABS. When I was born, my mum and dad had many scares for what I would have to face during my lifetime, For example, how to ride a bike?

Since I have remembered, I was raised to respond with “I was born like that.” If I ever got asked “What happened to your arm?”,

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