Teens/Adult – their own stories

Megan’s ABS Story

All throughout my life, I’ve been told “You’re one of a kind” and “You’re God’s gift to the world.” I enjoy being told things like this because it makes me feel cared for and accepted. I, was born in 1993 with ABS –  which affected my left arm by not letting it develop from the elbow down. Its been a “bumpy” road getting to where I am now but, if I could go back in time – I wouldn’t change a thing. I enjoy standing out and being “an apple amongst a pantry full of oranges.”

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Melissa’s ABS Story

My name is Melissa. I live in Maine and I am 26 years old. I was born with ABS. Three of the five fingers on my right hand, two of five on my left hand and my entire left foot is affected. Back in 1980 when I was born, not much was known about ABS, I personally have spent much time in the last 16 years trying to find out more. Sadly however, still to this day, there is not enough talk about Amniotic Band Syndrome.

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Patsy’s ABS Story

I was born in 1965 with ABS. I have a missing ring finger & band around the middle finger of my left hand. On my right hand all four fingers were fused but my thumb was unaffected.

Both of my feet were clubbed. The right foot did not need surgery but my big toe was missing & the next 2 toes were stunted & webbed. My left leg needed lots of Surgery to correct & I have 2 bands one around my ankle &

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Pete’s ABS Story

I was born in 1979 with a “natural” amputation of my right arm, four inches below the elbow. This has certainly not slowed me down, I am an avid rock climber, ice climber, mountaineer, snowboarder, kayaker, biker and some more stuff.

I have never before tried to find out much information about ABS, but now at 25 I am realizing that it has become more difficult to live with my arm, or lack thereof. So in trying to really come full circle with what I have been given in life I guess I felt like I needed to branch out,

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Rebekah’s ABS Story

My name is Rebekah Hale. I was born with my left hand and forearm missing due to Amniotic Band Syndrome. I used to be extremely self conscious of my arm. When we would go places and sit down, I would tuck my arm behind my back. From about seven to ten, I was very shy about my arm. Thinking back, I’m almost positive I was ashamed to be the way I am.

Ridicule from the children at school didn’t exactly help.

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Ross’s ABS Story

I’m 47 years old and just learned about ABS. My right arm matches the description of one of the potential outcomes of the syndrome, as I was born with a below-elbow amputation and have the characteristic “nubbins” (I dislike the word) on the end of my limb. As a youngster, I was told that umbilical cord ‘strangulation’ of the limb was possibly the cause of my deformity. The ABS explanation strikes me as more plausible.

I was first fitted for a prosthesis when I was 14 months old,

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Stacey’s ABS Story

A physical disability does not determine who you are and what you can accomplish. A physical disability is only on the outside. It’s what’s on the inside that really matters.

Being born with Amniotic Band Syndrome has pushed me to succeed and show the world exactly what I can do. I learned to walk with a prosthesis at the age of fifteen months and I have been walking, running and playing sports ever since. I have participated in sports such as swimming,

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Terri’s ABS Story

Well my story begins November 19, 1958; I was born to two very young people who would turn out to be the best parents’ a child could have. I am very lucky. They endured all the surgeries, the stares, even people accusing my mom of putting rubber bands around my leg. Mom even had to live in San Raphael, California (90 miles from home)to be by my side, starting at the age of 6 months old. Dad stayed in Sacramento and worked very hard to keep their heads above water.

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Tracy’s ABS Story

Hi my name is Tracy and I was born October 11 1970. I was born with a left hand deformity. I have a thumb about half inch long banded at the base, pointer and middle finger are just little round stubs, my ring finger and pinky are also bout half inch long and fussed together. I do have fingernail on thumb and ring finger and pinky.

I have never had any corrective surgeries. Every time I say something to my mother about surgery she tells me not to do it,

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Tracy’s ABS Story

Firstly, I really appreciate this site. I am currently 24 years old, almost 25. Until now, no one has ever actually given me a name for the birth defects I was born with. A friend called me today and told me he met someone who had similar looking defects to mine, so I started to research it with the name he gave me: Amniotic Banding Syndrome. It’s such an amazing feeling finally to know that there are others with the same conditions. I had always been told that my problems were just called “birth defects.”

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