Ruth - Evan's Mom

Harry – My Story

amniotic band syndrome

It all started on the 5th July 2009. I was born with a condition called amniotic constriction bands. This happens when you are in your mum’s tummy and bands randomly wrap around your body. The worst case scenario is your limbs could be chopped off. Luckily, this did not happen to me although on my left hand half my thumb was chopped off, my right hand was more severe because all of my fingers were fused together and a few bits were cut off.

Read more Harry – My Story

My ABS Story

I was born in 2003 with deformed toes on my left foot and partially deformed toes on my right foot due to ABS.

As a child, I was bullied and was very insecure about my “defect,” even though I could move just as well as a normal person could. When I was in second grade, I told myself I could never wear open-toed shoes outside and would be forced to keep my toes a secret or I would never get friends or a boyfriend.

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ABS experience

My baby was born with ABS. His left hand has a fully developed thumb, his pinky was underdeveloped but made length but his three middle fingers remained webbed. This was not detected in any of my ultrasounds so it was a shock to see this when he was born. I spent/spend days crying feeling like I did something wrong.

He can use his hand. Not like the right hand but he works with what he has. I accept the things I cannot change.

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My little princess with ABS

Hi there.

I am so glad that I have found this site concerning ABS.

I gave birth to my little girl on the 08 September 2016, it was a long and difficult pregnancy. The doctors were worried about the baby, because she was not growing well, each scan we went for, told us the same thing. Eventually doctors diagnosed my condition as IUGR.

She was born at 38 weeks and weighed 2.050 kg. We were so focused on the baby not growing well,

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Childhood misconceptions

I was born in 1964, and my parents were not given a name or reason why my fingers were different. Here are some poignant stories related to my difference growing up:

As a child, I thought I wouldn’t be allowed to marry because I could not wear a wedding ring on my left ring finger.

I remember being uncomfortable at Thanksgiving, when the class would trace their hand to create a picture of a turkey. I never would.

In elementary school,

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My ABS Story

I was born in 1989 with ABS affecting both of my of hands and feet. I’m a few fingers and toes short of a set and the ones that I have come in a variety of shapes and sizes. I was incredibly lucky to receive top care from Sick Kids hospital in Toronto, Canada where I underwent numerous reconstructive surgeries to give me the best possible use of my hands and feet. I have had skin grafts and bone grafts and stitches and I came out relatively unscathed on the other side.

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Isaac’s Nibs

ABS nibs

Shortly after my twins were born, my husband walked my son over to my recovery bed (I had a C-section) with a stunned look on his face and said, ‘Look at this.’ He peeled Isaac’s hand open to reveal a strange looking little left hand. My husband was the first to notice the anomaly, despite having nearly a dozen medical professionals involved in the twins’ delivery.

We were shocked and upset. We silently and immediately began to question all the things he wouldn’t be able to do without 4 functioning fingers.

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Mr. Right Hand

Ahmiir

Hello my name is Crystal and I am the mother to two healthy baby boys, 8 year old Naziir and 8 month old Ahmiir born on July 12, 2016. Both of my pregnancies were very normal both boys were delivered by C-section. I was healthy and active before my kids were born. While pregnant with Ahmiir, all of my scans were normal no problem with the baby was detected so it was a total surprise to all of us, including the doctor, when this little guy came out missing his left hand.

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Jay’s Story

Hello! My name is Taylor, and I’m Jay’s mother. In November 2015 I found out I was pregnant. We were excited and anxious like most first time parents are. We found out (early) that we were having a little boy! We had a pretty uneventful pregnancy up until our anatomy scan. At our anatomy scan we were told they found an extra membrane near our baby boys head and referred us to a specialist. We met with the specialist who told us he had Amniotic Band Syndrome.

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I have ABS.

When I was born, my left hand had no fingers, just nubs. My name is Kelsey. I am almost sixteen years old. After I was born the doctors did not really know what was exactly wrong with my hand. I was admitted to a children’s hospital as soon as a day old. I had a total of two surgeries. My first surgery was at the age two, they took bones out of my toes to put into my hand. I had to learn how to walk on my feet afterwards.

Read more I have ABS.