Babies/Children – by Parents

Harry – My Story

amniotic band syndrome

It all started on the 5th July 2009. I was born with a condition called amniotic constriction bands. This happens when you are in your mum’s tummy and bands randomly wrap around your body. The worst case scenario is your limbs could be chopped off. Luckily, this did not happen to me although on my left hand half my thumb was chopped off, my right hand was more severe because all of my fingers were fused together and a few bits were cut off.

Read more Harry – My Story

ABS experience

My baby was born with ABS. His left hand has a fully developed thumb, his pinky was underdeveloped but made length but his three middle fingers remained webbed. This was not detected in any of my ultrasounds so it was a shock to see this when he was born. I spent/spend days crying feeling like I did something wrong.

He can use his hand. Not like the right hand but he works with what he has. I accept the things I cannot change.

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My little princess with ABS

Hi there.

I am so glad that I have found this site concerning ABS.

I gave birth to my little girl on the 08 September 2016, it was a long and difficult pregnancy. The doctors were worried about the baby, because she was not growing well, each scan we went for, told us the same thing. Eventually doctors diagnosed my condition as IUGR.

She was born at 38 weeks and weighed 2.050 kg. We were so focused on the baby not growing well,

Read more My little princess with ABS

Isaac’s Nibs

ABS nibs

Shortly after my twins were born, my husband walked my son over to my recovery bed (I had a C-section) with a stunned look on his face and said, ‘Look at this.’ He peeled Isaac’s hand open to reveal a strange looking little left hand. My husband was the first to notice the anomaly, despite having nearly a dozen medical professionals involved in the twins’ delivery.

We were shocked and upset. We silently and immediately began to question all the things he wouldn’t be able to do without 4 functioning fingers.

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Mr. Right Hand

Ahmiir

Hello my name is Crystal and I am the mother to two healthy baby boys, 8 year old Naziir and 8 month old Ahmiir born on July 12, 2016. Both of my pregnancies were very normal both boys were delivered by C-section. I was healthy and active before my kids were born. While pregnant with Ahmiir, all of my scans were normal no problem with the baby was detected so it was a total surprise to all of us, including the doctor, when this little guy came out missing his left hand.

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Jay’s Story

Hello! My name is Taylor, and I’m Jay’s mother. In November 2015 I found out I was pregnant. We were excited and anxious like most first time parents are. We found out (early) that we were having a little boy! We had a pretty uneventful pregnancy up until our anatomy scan. At our anatomy scan we were told they found an extra membrane near our baby boys head and referred us to a specialist. We met with the specialist who told us he had Amniotic Band Syndrome.

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Sophia’s Story

We had a 20-week ultrasound done and they found a two vessel cord and we were sent to a specialist to make sure that there was nothing more abnormal that they weren’t seeing. When we saw the specialist they noticed that our little girl’s fingers were not separating and they could not see all the toes on her left foot and no toes on the right. We were told that we just needed to wait until she was born to really determine what was going on as the ultrasounds couldn’t really tell us everything.

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Oliver’s Journey

Oliver's Birth story

My son, Oliver was due on 6/11/15. Our pregnancy got complicated around 18 weeks, when the amniotic banding was first detected in an ultrasound. From then on, my husband and I were warned to be prepared for our son to be born with a missing limb and the fact that my amniotic sac had been “weakened” so my water could break at any time starting at 18 weeks.

We went to weekly or biweekly ultrasounds and they tried to monitor where the banding was,

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I’m Still Lejendary

My pregnancy was like any other pregnancy until my 20-week anatomy scan. We found out that our baby boy had Amniotic Band Syndrome and would have only half a portion of his right arm and a full left arm. I, like many others, had no idea what amniotic band syndrome was and had never met anybody else with it.

I was initially sad, fearing the torment and all the things he would not be able to do. Of course, everyone who is not going through it has encouraging words,

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My son Kyren

Kyren

This is my baby Kyren, he was born without his left hand. When I went in for my 20 week ultrasound I was told there was something wrong with him. I went to several different doctors and had multiple tests and ultrasounds done, after all those I was told his left arm didn’t develop all the way and he would be born without his hand. I was so worried and scared.

Once he was born, the moment I laid my eyes on him I saw no imperfections whatsoever he is perfect.

Read more My son Kyren