Babies/Children – by Parents

ABS found early – To Amnio or Not to Amnio?

As I write this, my fingers seem to work, but my brain is having trouble processing how we got to this point. I am 34 years old and this is my first pregnancy – a result of an IUI after naturally trying unsuccessfully for a year. As all parents who yearn for a child, we were beside ourselves with happiness.

Since IUI was our method of conceiving, we had weekly 2D ultrasounds. All was going well with normal heart beat, normal growth,

Read more ABS found early – To Amnio or Not to Amnio?

I’m still growing my ABS Baby

Hi everyone! My name is Barby, and my husband and I were delighted when we found out I was expecting in March of 2018… Even more over the moon when we found out in June via the Harmony test that it would be a boy! I come from a family of all girls, so this was exciting for the soon-to-be grandmas too. My entire pregnancy has been a breeze. The worst symptom I had was heartburn and maybe a headache here and there.

Read more I’m still growing my ABS Baby

Phoenix’s Story

Our story starts back in August 2017, I was about 20 weeks pregnant and we were at an Ultrasound appointment for my son’s gender. At this appointment, they told me the wrong diagnosis. They had told me my son had no brain and to terminate my pregnancy. Instead, we went to a specialist and they told me that he had ABS.

Phoenix had a band wrapped around his skull so I didn’t fully develop, he also had amniotic bands wrapped around his fingers and toe.

Read more Phoenix’s Story

Mi pequeño bebe le falto el brazo derecho

Despues de diez (10) años decidimos tener otro bb mi pareja y yo, al principio tuvo complicaciones, se hiceron todo los ultrasonidos, los doctores decían que todo iba bien. pero al día de la gran bienvenida al mundo de nuestro DAVID OVIDIO, nos manifestaban los doctores si sabiamos lo que tenía el bb, nosotros asombrados no sabíamos que habia pasado, y nos indicaban que no habia desarrollado una mano que nos asombro, ya hoy e n día el bb tiene mas de 1 año,

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Harry – My Story

amniotic band syndrome

It all started on the 5th July 2009. I was born with a condition called amniotic constriction bands. This happens when you are in your mum’s tummy and bands randomly wrap around your body. The worst case scenario is your limbs could be chopped off. Luckily, this did not happen to me although on my left hand half my thumb was chopped off, my right hand was more severe because all of my fingers were fused together and a few bits were cut off.

Read more Harry – My Story

ABS experience

My baby was born with ABS. His left hand has a fully developed thumb, his pinky was underdeveloped but made length but his three middle fingers remained webbed. This was not detected in any of my ultrasounds so it was a shock to see this when he was born. I spent/spend days crying feeling like I did something wrong.

He can use his hand. Not like the right hand but he works with what he has. I accept the things I cannot change.

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My little princess with ABS

Hi there.

I am so glad that I have found this site concerning ABS.

I gave birth to my little girl on the 08 September 2016, it was a long and difficult pregnancy. The doctors were worried about the baby, because she was not growing well, each scan we went for, told us the same thing. Eventually doctors diagnosed my condition as IUGR.

She was born at 38 weeks and weighed 2.050 kg. We were so focused on the baby not growing well,

Read more My little princess with ABS

Isaac’s Nibs

ABS nibs

Shortly after my twins were born, my husband walked my son over to my recovery bed (I had a C-section) with a stunned look on his face and said, ‘Look at this.’ He peeled Isaac’s hand open to reveal a strange looking little left hand. My husband was the first to notice the anomaly, despite having nearly a dozen medical professionals involved in the twins’ delivery.

We were shocked and upset. We silently and immediately began to question all the things he wouldn’t be able to do without 4 functioning fingers.

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Mr. Right Hand

Ahmiir

Hello my name is Crystal and I am the mother to two healthy baby boys, 8 year old Naziir and 8 month old Ahmiir born on July 12, 2016. Both of my pregnancies were very normal both boys were delivered by C-section. I was healthy and active before my kids were born. While pregnant with Ahmiir, all of my scans were normal no problem with the baby was detected so it was a total surprise to all of us, including the doctor, when this little guy came out missing his left hand.

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Jay’s Story

Hello! My name is Taylor, and I’m Jay’s mother. In November 2015 I found out I was pregnant. We were excited and anxious like most first time parents are. We found out (early) that we were having a little boy! We had a pretty uneventful pregnancy up until our anatomy scan. At our anatomy scan we were told they found an extra membrane near our baby boys head and referred us to a specialist. We met with the specialist who told us he had Amniotic Band Syndrome.

Read more Jay’s Story