Amniotic Band Rupture Sequence

At 19 years old, falling pregnant is the last thing you really ever think is ever going to happen. With being so young and having to interpret that your about to bring a beautiful baby into the world within just a not so far away 9 months, complications within the pregnancy definitely never crosses your mind. I feel as though awareness and information about these situations that happen within pregnancies aren’t recognised enough or educated enough.

Finding out I was pregnant at an early 4 weeks, it all begun to feel so incredibly real. However little did I know everything was going to down hill really quickly. Falling pregnant is hard, dealing with the mentality and physically is hard, but when complications are involved it seems to get even harder.

When I was 10 weeks pregnant the obstetrician had found a marked separation in the amnion and chorion which was generally found ‘normal’ at 10 weeks. However when the marked separation was present through to 16 weeks when the amnion ruptured there were significant complications that came running through. The obstetrician raised concerns about the amnion closely surrounding the babies foot and arms, which then was identified as a high risk of amniotic band syndrome. The GP had referred me through to a specific hospital that specialised in fetal medicine in which the findings where significantly worse than expected. The baby was found to have no abnormality in the cranium, brain, face, neck, heart, thorax, abdominal wall, GI Tract, urogenital tract, or spine however abnormalities where found within the arms and legs.

Both hands appear to have missing fingers which can be caused from the amnion strands and the right foot appears to have talipes (clubfoot). The doctors observed the ultrasound that was undertaken which turned into a strong consultation of whether myself and the father of the baby would like to continue the pregnancy or discontinue the pregnancy due to the amniotic band rupture sequence.

The father and I were made aware of IUFD and the affects and abnormalities that can come with continuing the pregnancy however that did not in any way affect the amount of love and faith we have in our little baby.

At the moment I am in a head space where I want to seek more information. If there are any parents out there that can advise me of a similar situation you have been through please email me your stories. I would love to hear them.

Thank you.

3 thoughts on “Amniotic Band Rupture Sequence

  1. My brother was born without his left hand. It was unknown until birth and my mom said, “Oh, cool.” She sought therapy and prothesis for my brother at a young age and treated him normally to us siblings. Sure, she had to answer questions, I did too being so close in age and grades to him at school. But we made light of it most of the time.
    When he was a teen, he met a man who had an accident resulting with his hand being amputated nearly to the same length as my brother. The two were the same height, built, color of hair and shared the same body mannerisms that come from having just one hand. That man was there to support my brother’s confidence growth as a teen.
    I encourage you to seek a group for you and your perfect child. Follow up with prosthetics and therapy. Your child will grown in confidence as you have confidence in them.
    My brother is a handsome, successful husband and step father. And he can type faster than me.

  2. I was born very similar to your baby. And I’m 58 years old I have never had any trouble with life it hasn’t stop me from anything. When your born this way you that’s all you know. My mother didn’ttreat me and different from sister. I have a grow son and two beautiful grand baby’s. The hardest part is kids making fun of my hands when I was young. I hope this makes you feel better about your baby

    1. Hi Pam,
      That is so beautiful and so good to hear! I believe God wouldn’t give myself such a challenge if he didn’t think I could handle it. Your story is so beautiful to hear!

Comments are closed.