We are not an organization and we are not affiliated with any organization. Our eldest son, Evan, was born with bilateral clubfeet and abs affecting his left hand (read Evan’s story for more about us). We personally support the work of the CBM but we are not part of their organization.
If you are sending a question please realize I have no medical background and all that I know about Amniotic Band Syndrome can be found on this web site.
Please upload your own story to the site.
Thanks for visiting,
~ Ruth, Mom to Evan