John Kyle’s Story

I didn’t want to get pregnant at first because of the situation that I was in, but it happened. I was so in shock that I had 4 pregnancy test done and they all came out positive. So I accepted it and started to plan. I went to my scheduled doctors appointments and then my mother died. I asked my doctor if it was okay to fly even if the flight was 14 hours, she told me it was fine. At 23 weeks I had my second ultrasound and that’s when I found out I was having a boy.

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Joshua’s Story

Hi, my name is April and I am 25 years old. My husband and I lost a child to what they are thinking is ABS on September 28, 2005. I had previously had a miscarriage about 7 years ago, so this pregnancy held more anxiety I suppose. I work in an OB-GYN office so I see all the good and bad that can happen. I had my first ultrasound at 6 weeks just to verify the pregnancy and things were normal. Then around 9 or 10 weeks I had another ultrasound due to a small amount of bleeding and anxiety.

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Katelyn’s Story

When I got pregnant I was very scared, but happy. I had what we all thought was a normal pregnancy. When I was about 8 months pregnant, my doctor was doing a sonogram to determine the sex of the baby. It was a girl! I was so excited. But, then he said that I had a cyst on my ovary. He said he would make me an appointment with a specialist, but said not to worry about it. 4 days later, I went in to see the specialist.

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Kody’s Story

Before I had my son, Kody, I had never heard of Amniotic Band Syndrome. That was 12 years ago, and its only been within the past couple of years that I’ve heard other stories of ABS and its devastation.

I became pregnant with Kody in August 1989. My husband and I were so excited about having our first baby. At 13 weeks my ultrasound was normal and baby was fine. At 25 weeks, the doctor was concerned with my small size and the fact that I hadn’t been feeling much movement so I was sent for a scan.

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Adrian’s story

Fourteen years ago I had a little girl named Adrian. She was born with severe amniotic banding. I didn’t find out anything was going to be wrong with her until 42 weeks into the pregnancy. I was 19 at the time and very afraid. It was the hardest part of my life.

The doctor told me that she would not live after birth but she did live for 6 weeks. She lived her short life in a nursing home and was treated like a little angel.

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Lilly’s Story

My fiancee and I decided to start a family in February 2006. We were excited when I got pregnant in March. At eight weeks I had an ultrasound done to determine how far along I was, because we thought I might have been further along. During that ultrasound everything looked great. Things were going fine. I had morning sickness the first month and a half, but never got “sick”. I was feeling so good, I didn’t know why pregnant women complained so much.

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Maggie Anela

In October 2005, I found out I was pregnant with my 4th child. I was slightly nervous but quickly became excited at the thought of being a mother of four. I had an ultrasound at 9 weeks to determine my dates, another at 13 weeks to screen for Down Syndrome and yet another at 18 weeks when I learned I was having a 4th girl!!! All of the ultrasounds were completely normal…no cause for alarm! I had a routine doctor visit at 21 weeks and yet again we heard a strong heartbeat.

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LouAnn Louise

We have been married for eight years and tried to get pregnant for a long time. I found out about four years ago that I have polycystic ovarian disease. The only hormone that was out of whack was my insulin level. It didn’t process correctly. I went from a size 16/18 to a 28 in 7 years. Nothing I did helped. I went to a popular weight loss program and lost 50 pounds and was in a size 22. I found out I was pregnant and would have the baby in January.

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Sarah’s Story

My name is Sarah.  I am 25 years old and I have a son who will be 3 in September and a wonderful husband. Last year we became pregnant with our second child. We were very excited. The day before my 20 week ultrasound scan was my son’s 2nd birthday party and we couldn’t stop talking about whether the baby was a boy or a girl. I had a pretty uneventful and happy pregnancy. I had some really bad pains at the beginning but the doctor said it was normal.

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Sarah’s Story

Amniotic band syndrome. What the hell is amniotic band syndrome, and why was it happening to me? These are the thoughts I thought for weeks before I lost my daughter Emily to this unusually rare in-uterine disorder.

Women are built to produce children. I used to be the kind of feminist that would laugh in the face of that concept, now I am the kind of feminist that has felt what maternal instinct can do to someone. When the doctors told me that Emily was missing fingers because my uterus was failing at what it was supposed to do,

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