Sarah’s Story

My name is Sarah.  I am 25 years old and I have a son who will be 3 in September and a wonderful husband. Last year we became pregnant with our second child. We were very excited. The day before my 20 week ultrasound scan was my son’s 2nd birthday party and we couldn’t stop talking about whether the baby was a boy or a girl. I had a pretty uneventful and happy pregnancy. I had some really bad pains at the beginning but the doctor said it was normal.

When it came time for the ultrasound we were really excited. But our joy soon turned to horror. The technician said she couldn’t find the right arm and had to find a doctor. When they returned the doctor confirmed that there was NO right arm. So he searched and said that the heart was also weak. They did not know what caused this and why it was happening. We were told that the baby would miscarry or be stillborn.  The heart was getting weaker and there was nothing we could do.

My angel was stillborn on September 10, 2001. We do not know if it was a boy or girl. The problems were worse than they had thought. There was no vascular system on the right side of the body, the arm was non-existent and the baby’s head was fused with the shoulder bone on the right side. The baby could not have made it. I know that now.

I should say though that it took the doctors until recently to tell me the name of what caused this and the severity of what was wrong with my baby. I have questioned everyday since and now, 10 months later I am reassured.  I keep thinking though, what if the deformities were not as bad as they turned out to be… after reading all these stories I know that this didn’t turn out like these stories normally do. But the doctors I had didn’t know a thing about Amniotic Band Syndrome.  Something should be done about that.

I am now expecting  a baby in December of this year and she is healthy and perfect. Thank you for letting me share this and read other people’s stories. It has been a big help.