Stories

ABS found early – To Amnio or Not to Amnio?

As I write this, my fingers seem to work, but my brain is having trouble processing how we got to this point. I am 34 years old and this is my first pregnancy – a result of an IUI after naturally trying unsuccessfully for a year. As all parents who yearn for a child, we were beside ourselves with happiness.

Since IUI was our method of conceiving, we had weekly 2D ultrasounds. All was going well with normal heart beat, normal growth,

Read more ABS found early – To Amnio or Not to Amnio?

I’m still growing my ABS Baby

Hi everyone! My name is Barby, and my husband and I were delighted when we found out I was expecting in March of 2018… Even more over the moon when we found out in June via the Harmony test that it would be a boy! I come from a family of all girls, so this was exciting for the soon-to-be grandmas too. My entire pregnancy has been a breeze. The worst symptom I had was heartburn and maybe a headache here and there.

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Phoenix’s Story

Our story starts back in August 2017, I was about 20 weeks pregnant and we were at an Ultrasound appointment for my son’s gender. At this appointment, they told me the wrong diagnosis. They had told me my son had no brain and to terminate my pregnancy. Instead, we went to a specialist and they told me that he had ABS.

Phoenix had a band wrapped around his skull so I didn’t fully develop, he also had amniotic bands wrapped around his fingers and toe.

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My life with Amniotic Band Syndrome

My name is Marissa, I am 29 years old. I learned to do everything as any other child and now I can talk with others like myself who have these limb differences. There is no glory for myself, it was God who whispered in my ear not to lose hope that it would all come full circle and make sense.

Self-pity, resentment, depression – I would say are the chains that come with these hand, feet or any other limb differences always at different stages of your life.

Read more My life with Amniotic Band Syndrome

Angel

2004…
My husband and I discovered I was pregnant. We were having our first baby….how very exciting! First ultrasound seemed normal but during my second trimester scan…the sonographer displayed telling signs of something not being right.

I waited patiently….anxiously….to be told that the baby had anomalies and the outcome did not look good. In fact, it was shortly after that I was advised to terminate the pregnancy. I was distraught. Feeling very alone but strong in my faith, I declined the pressures that came at me to abort my God-given unborn.

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Mi pequeño bebe le falto el brazo derecho

Despues de diez (10) años decidimos tener otro bb mi pareja y yo, al principio tuvo complicaciones, se hiceron todo los ultrasonidos, los doctores decían que todo iba bien. pero al día de la gran bienvenida al mundo de nuestro DAVID OVIDIO, nos manifestaban los doctores si sabiamos lo que tenía el bb, nosotros asombrados no sabíamos que habia pasado, y nos indicaban que no habia desarrollado una mano que nos asombro, ya hoy e n día el bb tiene mas de 1 año,

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Harry – My Story

amniotic band syndrome

It all started on the 5th July 2009. I was born with a condition called amniotic constriction bands. This happens when you are in your mum’s tummy and bands randomly wrap around your body. The worst case scenario is your limbs could be chopped off. Luckily, this did not happen to me although on my left hand half my thumb was chopped off, my right hand was more severe because all of my fingers were fused together and a few bits were cut off.

Read more Harry – My Story

My ABS Story

I was born in 2003 with deformed toes on my left foot and partially deformed toes on my right foot due to ABS.

As a child, I was bullied and was very insecure about my “defect,” even though I could move just as well as a normal person could. When I was in second grade, I told myself I could never wear open-toed shoes outside and would be forced to keep my toes a secret or I would never get friends or a boyfriend.

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ABS experience

My baby was born with ABS. His left hand has a fully developed thumb, his pinky was underdeveloped but made length but his three middle fingers remained webbed. This was not detected in any of my ultrasounds so it was a shock to see this when he was born. I spent/spend days crying feeling like I did something wrong.

He can use his hand. Not like the right hand but he works with what he has. I accept the things I cannot change.

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My little princess with ABS

Hi there.

I am so glad that I have found this site concerning ABS.

I gave birth to my little girl on the 08 September 2016, it was a long and difficult pregnancy. The doctors were worried about the baby, because she was not growing well, each scan we went for, told us the same thing. Eventually doctors diagnosed my condition as IUGR.

She was born at 38 weeks and weighed 2.050 kg. We were so focused on the baby not growing well,

Read more My little princess with ABS