Stories

Although this condition can happen naturally, mine was a bit of a screw-up. For those of you who don’t know, Amniotic Band Syndrome is a condition where the bands of tissue surrounding the baby become entangled with the baby. This cuts off circulation to parts of the body such as fingers and toes which results in the limbs dying, not growing, or being squeezed off. There are some situations where the bands can wrap around the neck or other parts of the body and become fatal.

… Read more My life with Accidental Amniotic Band Syndrome

I was born with ABS in August of 1995. Doctors confirmed the ABS on my hands and one foot, as well as a cleft lip and palate, and a brain disorder called hydrocephalus. My right hand had all four fingers squished together, my right foot had the first three toes formed together. My right ankle and the index and ring fingers of my left hand both showed signs of constriction but did not impair me.

I have experienced several surgeries as a result of all of these medical problems.

… Read more My Story of ABS

Hello, my name is Tia. I am 23 years old, and I was also born with Amniotic Band syndrome. Which affected some of my fingers on both hands, two bands that affected both of my legs right above my ankles and two toes on my right foot. I’m just writing to you all to let you know even though we are born different we are special, we are relentless, and we should be proud of who we are.

On a personal note,

… Read more We are in this together!!

My son, Anthony, was born 2/9/1995 with ABS that had cut off growth of some of his toes on both feet. He has only nubs of toes (with no bone) for a big toe on one foot but the other foot he has a big toe. Both feet have middle toes that were wrapped with bands that caused toes to either not form at all or only somewhat.

The amazing thing is, the day he was born, the doctors held him up by his fingers and let his feet touch the table and held him to walk.

… Read more All Grown Up

I’m 12, I’ve lived with amniotic band Syndrome all my life. I found out that it was called ABS about two years ago. I live in the uk, Wolverhampton and every-time I wanted a prophetic or needed an operation or I had a ache in that area, I always hand to go to Birmingham. The uk never knew about what to do. Birmingham was the place where I learned to tie my laces, I leaned how to write properly, I saw other people with disabilities,

… Read more My story