Stories

God Knows Best

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I was born in 1955 In Birmingham, Alabama. I grew up up with four fingers malformed and never new that I had anything wrong with my hand. I played every sport I could play football, basketball, baseball, wrestling without ever feeling held back by my hand. I was left handed so that solved some problems such as writing and throwing a ball.

In the teenager years I was embarrassed at times for people to see my hand and did get some looks when I would shake hands being a gentleman or when accepting a congratulatory handshake.

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My Story

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In 1957, when I was born, my parents were told that I was crippled, a bad seed, that I would never walk and probably have brain damage. They were told to put me in a home and forget about me. Why? Because I was born with 2 fingers on my left hand, 4 toes on my left foot (which was also clubbed) and my right foot is just a stub with a small toe on it.

My parents did just the opposite!

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ABS found early – To Amnio or Not to Amnio?

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As I write this, my fingers seem to work, but my brain is having trouble processing how we got to this point. I am 34 years old and this is my first pregnancy – a result of an IUI after naturally trying unsuccessfully for a year. As all parents who yearn for a child, we were beside ourselves with happiness.

Since IUI was our method of conceiving, we had weekly 2D ultrasounds. All was going well with normal heart beat, normal growth,

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I’m still growing my ABS Baby

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Hi everyone! My name is Barby, and my husband and I were delighted when we found out I was expecting in March of 2018… Even more over the moon when we found out in June via the Harmony test that it would be a boy! I come from a family of all girls, so this was exciting for the soon-to-be grandmas too. My entire pregnancy has been a breeze. The worst symptom I had was heartburn and maybe a headache here and there.

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Phoenix’s Story

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Our story starts back in August 2017, I was about 20 weeks pregnant and we were at an Ultrasound appointment for my son’s gender. At this appointment, they told me the wrong diagnosis. They had told me my son had no brain and to terminate my pregnancy. Instead, we went to a specialist and they told me that he had ABS.

Phoenix had a band wrapped around his skull so I didn’t fully develop, he also had amniotic bands wrapped around his fingers and toe.

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My life with Amniotic Band Syndrome

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My name is Marissa, I am 29 years old. I learned to do everything as any other child and now I can talk with others like myself who have these limb differences. There is no glory for myself, it was God who whispered in my ear not to lose hope that it would all come full circle and make sense.

Self-pity, resentment, depression – I would say are the chains that come with these hand, feet or any other limb differences always at different stages of your life.

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Angel

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2004…
My husband and I discovered I was pregnant. We were having our first baby….how very exciting! First ultrasound seemed normal but during my second trimester scan…the sonographer displayed telling signs of something not being right.

I waited patiently….anxiously….to be told that the baby had anomalies and the outcome did not look good. In fact, it was shortly after that I was advised to terminate the pregnancy. I was distraught. Feeling very alone but strong in my faith, I declined the pressures that came at me to abort my God-given unborn.

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Mi pequeño bebe le falto el brazo derecho

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Despues de diez (10) años decidimos tener otro bb mi pareja y yo, al principio tuvo complicaciones, se hiceron todo los ultrasonidos, los doctores decían que todo iba bien. pero al día de la gran bienvenida al mundo de nuestro DAVID OVIDIO, nos manifestaban los doctores si sabiamos lo que tenía el bb, nosotros asombrados no sabíamos que habia pasado, y nos indicaban que no habia desarrollado una mano que nos asombro, ya hoy e n día el bb tiene mas de 1 año,

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Harry – My Story

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amniotic band syndrome

It all started on the 5th July 2009. I was born with a condition called amniotic constriction bands. This happens when you are in your mum’s tummy and bands randomly wrap around your body. The worst case scenario is your limbs could be chopped off. Luckily, this did not happen to me although on my left hand half my thumb was chopped off, my right hand was more severe because all of my fingers were fused together and a few bits were cut off.

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My ABS Story

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I was born in 2003 with deformed toes on my left foot and partially deformed toes on my right foot due to ABS.

As a child, I was bullied and was very insecure about my “defect,” even though I could move just as well as a normal person could. When I was in second grade, I told myself I could never wear open-toed shoes outside and would be forced to keep my toes a secret or I would never get friends or a boyfriend.

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