Amniotic band syndrome. What the hell is amniotic band syndrome, and why was it happening to me? These are the thoughts I thought for weeks before I lost my daughter Emily to this unusually rare in-uterine disorder.
Women are built to produce children. I used to be the kind of feminist that would laugh in the face of that concept, now I am the kind of feminist that has felt what maternal instinct can do to someone. When the doctors told me that Emily was missing fingers because my uterus was failing at what it was supposed to do,
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This is the story of our precious angel, Vanessa Lane. She was born on Wednesday, October 2, 2002 at 8:36 p.m. She was 7 lbs and 5 oz and 20 inches. When she came out, they laid her on my chest and told us that she was probably taking her last breaths and that we should say goodbye. But she didn’t go. She stayed with us for 6 days.
She was born with birth defects to her skull and brain (Acrania and open encephalocele),
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This is the story of my daughter Zoey who was born stillborn from ABS. I am type 1 diabetic, have been for many years. I was diagnosed as being so at 7 years old. I was told at 13 years old that I would never be able to have children; supposedly my uterus was not strong enough. So when I found out I was pregnant with my daughter Makayla I was excited and surprised. I was 3 months pregnant when I found out so I had to make a major life style adjustment.
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I did not have an easy pregnancy. I was sick all the time, was extremely tired and only gained 8 pounds though out the pregnancy. I remember telling her dad it really hurts when she kicks which was unlike my first pregnancy where everything was fine, I remember praying lord please let her stop kicking because I feel like she is bruising my organs . I knew that something was wrong about the 24 week when I had only gained 4 pounds and was still wearing my regular cloths.
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Shelbie was born on July 31, 2003 with bilateral clubfeet and amniotic band syndrome. I had had a pretty stressful pregnancy.
My triple-screens numbers were in the range where it looked like she was going to have down-syndrome. I opted not to have an amniocenteses as there is high rate of miscarriage. We were thrilled to find out we were having a girl as we already had a 3 year old son, Sean. Sean was late to deliver and I had stress tests and quite a few ultrasounds with him.
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My name is Cathy Terblanche and this is my son, Stefan’s story. When my daughter, Danielle was 5 years old, my husband and I decided it was time for a second baby. I fell pregnant immediately. We were both delighted! My pregnancy was very different from the first pregnancy. He was a very quiet baby – obviously enjoying his sleep before coming out into this big world! I went for my regular monthly checks and each time a scan was done. I suffered terribly from morning sickness from day one to the very day he was born.
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Stevie was born on September 3rd, 2005 with ABS. While Stevie was in my tummy, The Amniotic Bands wrapped around my son’s left arm from below his elbow down. My husband and I did not know until the day he was born. I will never the shock, when they laid my little boy on top of me, I can not explain all the feelings that rushed through me or what I felt for my little boy when I looked down and saw his arm.
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Thomas was born at 32 1/2 weeks on October 19, 2002 (Due 12-09-02) 3 lbs 15 1/2 oz ; 16 1/2 inches long. Thomas is a healthy boy today because of modern medicine. If he was conceived only a few years ago he would not have survived.
He was an identical triplet, but his brothers were conjoined twins. The twins had no chance of survival, but were threatening the third baby’s life. As a result we made the tough decision to have surgery in San Fransisco that would stop the sharing of blood through Twin Twin Transfusion and save Thomas.
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Tyler was born on February 2nd, 2002 after a very complicated pregnancy. I had developed pre-eclampsia and was put on bed-rest a month before I was induced. I had tons of ultrasounds. Two a week-including a 3-D ultrasound. None of them indicated any problems with the baby. I prayed my whole pregnancy that my little boy would be born healthy and perfect….you know the saying 10 fingers and 10 toes.
When I found out I was pregnant I was a newly-wed and only 19 years old.
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My little girl was born June 13, 2007 in Huntsville, Alabama. Her name is Allyssa Cate. She is my third child and she is also my very first little girl. Allyssa was born without her right forearm and hand. We had no idea until she was born. I had a C-section so I couldn’t see her but I knew from the reaction in the room that something was wrong. Then my doctor finally came to the head of my bed to speak to my husband and me.
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