LouAnn Louise

We have been married for eight years and tried to get pregnant for a long time. I found out about four years ago that I have polycystic ovarian disease. The only hormone that was out of whack was my insulin level. It didn’t process correctly. I went from a size 16/18 to a 28 in 7 years. Nothing I did helped. I went to a popular weight loss program and lost 50 pounds and was in a size 22. I found out I was pregnant and would have the baby in January.

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Sarah’s Story

My name is Sarah.  I am 25 years old and I have a son who will be 3 in September and a wonderful husband. Last year we became pregnant with our second child. We were very excited. The day before my 20 week ultrasound scan was my son’s 2nd birthday party and we couldn’t stop talking about whether the baby was a boy or a girl. I had a pretty uneventful and happy pregnancy. I had some really bad pains at the beginning but the doctor said it was normal.

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Sarah’s Story

Amniotic band syndrome. What the hell is amniotic band syndrome, and why was it happening to me? These are the thoughts I thought for weeks before I lost my daughter Emily to this unusually rare in-uterine disorder.

Women are built to produce children. I used to be the kind of feminist that would laugh in the face of that concept, now I am the kind of feminist that has felt what maternal instinct can do to someone. When the doctors told me that Emily was missing fingers because my uterus was failing at what it was supposed to do,

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Vanessa Lane

This is the story of our precious angel, Vanessa Lane. She was born on Wednesday, October 2, 2002 at 8:36 p.m. She was 7 lbs and 5 oz and 20 inches. When she came out, they laid her on my chest and told us that she was probably taking her last breaths and that we should say goodbye. But she didn’t go. She stayed with us for 6 days.

She was born with birth defects to her skull and brain (Acrania and open encephalocele),

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This is the story of my daughter Zoey who was born stillborn from ABS. I am type 1 diabetic, have been for many years. I was diagnosed as being so at 7 years old. I was told at 13 years old that I would never be able to have children; supposedly my uterus was not strong enough. So when I found out I was pregnant with my daughter Makayla I was excited and surprised. I was 3 months pregnant when I found out so I had to make a major life style adjustment.


Riley’s ABS Story


I did not have an easy pregnancy. I was sick all the time, was extremely tired and only gained 8 pounds though out the pregnancy. I remember telling her dad it really hurts when she kicks which was unlike my first pregnancy where everything was fine, I remember praying lord please let her stop kicking because I feel like she is bruising my organs . I knew that something was wrong about the 24 week when I had only gained 4 pounds and was still wearing my regular cloths.

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Shelbie’s ABS Story

Shelbie was born on July 31, 2003 with bilateral clubfeet and amniotic band syndrome. I had had a pretty stressful pregnancy.

My triple-screens numbers were in the range where it looked like she was going to have down-syndrome. I opted not to have an amniocenteses as there is high rate of miscarriage. We were thrilled to find out we were having a girl as we already had a 3 year old son, Sean. Sean was late to deliver and I had stress tests and quite a few ultrasounds with him.

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Stefan’s ABS story

My name is Cathy Terblanche and this is my son, Stefan’s story. When my daughter, Danielle was 5 years old, my husband and I decided it was time for a second baby. I fell pregnant immediately. We were both delighted! My pregnancy was very different from the first pregnancy. He was a very quiet baby – obviously enjoying his sleep before coming out into this big world! I went for my regular monthly checks and each time a scan was done. I suffered terribly from morning sickness from day one to the very day he was born.

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Stevie’s ABS Story

Stevie was born on September 3rd, 2005 with ABS. While Stevie was in my tummy, The Amniotic Bands wrapped around my son’s left arm from below his elbow down. My husband and I did not know until the day he was born. I will never the shock, when they laid my little boy on top of me, I can not explain all the feelings that rushed through me or what I felt for my little boy when I looked down and saw his arm.

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Thomas’ Success Story

Thomas was born at 32 1/2 weeks on October 19, 2002 (Due 12-09-02) 3 lbs 15 1/2 oz ; 16 1/2 inches long. Thomas is a healthy boy today because of modern medicine. If he was conceived only a few years ago he would not have survived.

He was an identical triplet, but his brothers were conjoined twins. The twins had no chance of survival, but were threatening the third baby’s life. As a result we made the tough decision to have surgery in San Fransisco that would stop the sharing of blood through Twin Twin Transfusion and save Thomas.

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