I’m Sarah, 14 years ago, on the 1st of May, I was born in Sydney Australia. Amniotic Band Syndrome has cause for me to lose most of my forearm. From what my mother has told me, about 26 weeks into the pregnancy, I was diagnosed with ABS. When I was born, my mum and dad had many scares for what I would have to face during my lifetime, For example, how to ride a bike?
Since I have remembered, I was raised to respond with “I was born like that.” If I ever got asked “What happened to your arm?”,
… Read more Sarah’s ABS Story
Hi I am the Aunt of this beautiful baby boy named Max. My sister had him on June 25, 2011. She found out that he was missing an arm from the elbow down when she was six months pregnant. Being a first time aunt I was devastated, and being a nurse and very into nutrition I blamed it on what she ate, which I now know was completely wrong. I stumbled upon this site trying to research if this same thing happens often.
… Read more Max’s ABS Story
I’m turning 40 years old on October 9th of this year. Two weeks ago, I found out, for the first time, why I was born with one hand. Up until then, I was raised to answer the inevitable question, “What happened to your arm?” by saying, “I was born like that.” For my parents and I, this simply meant that the answer was, “I don’t know.”
In 1972, pregnant women didn’t receive sonograms. About 2 weeks before I was born, my Mom noticed that she was leaking fluid.
… Read more Erricka’s ABS story
The day for which I was waiting since a long time , come true on 07th Feb 2012. It was a long journey … to have my sweet little angel in my hand.
It was early morning 05.17 AM when I was blessed with little sweet girl “GEET”. For me it was and is the most beautiful moment of my life …. this moment was going to change my life forever… for initial 2 days I have just saw the face of baby ,
… Read more Geet’s ABS Story
Andrew David is 9 months old and he was born missing his right hand and forearm from below his elbow joint. I found out when I was having an ultrasound for the first time there was a possibility that my baby boy might not have a right hand. They sent me to a maternal fetal doctor in Wichita Kansas and it was then I found out my son was in fact missing his arm from the bottom of his elbow down. They told me it was really good that he had a elbow joint.
… Read more Andrew David’s ABS Story
Ariana was born missing her left forearm down on March 20th, 2005 in Christiana, Delaware. When I went for the ultrasound to determine the sex I was so excited because I just knew they were going to tell me that she was a girl and they did, the man doing the ultrasound said that he had to measure her and make sure that everything was okay and that it would just be a few more minutes then what seemed like an eternity later he said I can’t find her other hand.
… Read more Ariana’s ABS Story
My youngest son Conner was a twin and I had many complications during my pregnancy. At 15 wks. gestation I found out that one of my babies had passed on due to a rare syndrome found in 1:35,000 twin pregnancies;it is called TRAP syndrome. It is classified as twin to twin transfusion. Conner was the pump twin pumping all of the blood for both himself and his twin.
As time went on I began to have access fluid inside the placenta which was a sign of Conner becoming very stressed at around 21 wks.
… Read more Conner’s Story
Kerrie was born on October 5, 1996 in Seoul, Republic of Korea and she became our daughter when we traveled to Korea in April 1997 to bring her home–she was 6 months old when she became a part of our family.
She is missing a portion of her left arm–she has a few inches below her left elbow on down and that’s it.. We were told by doctors here in the USA that it was due to ABS. But she has never let that stop her!!
… Read more Kerrie’s ABS Story
My son Luken Edward was born on May 28th 2008 in Anniston, Alabama, he was missing the lower part of his left arm. It stops just below the elbow, he has little nubbins where his fingers may have started to grow before he was born.
The doctors told us they thought it was due to amniotic band syndrome, I had never heard of it before that. They were not sure it was because of ABS though. On all of the ultrasounds it was not seen,
… Read more Luken’s ABS Story
Hello, my name is Jeanine and I was born in 1983 with Amniotic Band Syndrome. ABS affected four fingers on my left hand, my left arm above the elbow and my right leg was about an inch shorter and clubbed.
I had my first surgery in June of 1986. By the age of 2 after 13 surgeries my parents started to loose count, and I have had many more since then. The fingers on my left hand were webbed but I had surgery to separate them.
… Read more Jeanine’s ABS Story