Fern’s story

Close up picture of fingers affected by Amniotic Band Syndrome

My name is Fern Graham I am 17 years old and I was born with Amniotic Band Syndrome. When I was born I had a short middle finger on my right hand also the finger beside (ring finger) has a fused knuckle. I had a tiny wee strand of skin joining my middle finger to my ring finger that the doctor snipped. I have noticed now that I’m older I have bands round my leg that aren’t very noticeable unless you are looking in the right light.

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Chapin’s ABS journey

Our son Chapin was born on June 16, 1992 in Washington DC. He was our first child and I had a normal pregnancy (with the exception of some light vaginal bleeding at 8 weeks, but my OB-GYN was not concerned). When he was born four days after his due date, the nurses performing the APGAR were the first to notice his small hands and short fingers on both hands.

Our doctor told us this was a result of Amniotic Band Syndrome.

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Blessings for Bryce

I gave birth to my son Bryce 13 days ago not aware of abs one bit. All the doctors could see on ultrasound was that his left leg was swollen. No bands could be seen.

All four of his limbs were affected, his left side being the least affected. On his left hand, all four of his fingers are fused together and his thumb is left out but it is noticeable that the band was wrapped around that as well because there is an indention.

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Chad, Our Little Warrior

First, I would like to thank every person who takes time to read Chad’s story. Chad was born on May 27, 2012 and we didn’t know that he was affected by ABS. He had 3 fingers on each hand and for those who are missing, he had half of them. I’m sorry for my english, we are french Canadian and we come from Montréal, Québec. Immediately after birth my first reaction was that it wasn’t important because I already love him so much.

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Phalla’s ABS Story

I’ve lived with amniotic bands syndrome for 31 years. I was born with two thumbs, fingers fused together and a missing toe.

I was born in a refugee camp in Thailand so unfortunately for me my parents have no medical records to share with me. We were sponsored to the US about a few months after I was born. I was told I was in and out of the UC Davis hospital but I honestly don’t remember going through any of the procedures/surgeries.

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Alyssa’s Story

My names Alyssa and I am 16 years old.  I have ABS towards my hands and feet. I live as much of a normal 16 year old life as I can I do sports and have a boyfriend, I’m a junior in high-school, and now have my permit to drive.

When I was younger every year or so I had to go to Shriners Hospital to get blood work done on my feet, the hands were less of a concern. The doctors a first thought id never walk due to the severity of the toes,

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Amniotic Band Sydrome = my fingers & toes

… and I wouldn’t trade them for anything in the world.

I was born with ABS, I’ve never really understood exactly what it was till now. Of course anyone can Google it and when I did I realized just how lucky I was that it only affected my fingers and toes. It truly is amazing how unique they are! (:

I’ve had several surgeries since I was 6 months old and each and every time I’ve learned to love my fingers and toes more and more.

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Stuart’s Story: 32 years and counting…

The following is a blog I first posted back in 2010. It’s still the only time I’ve put pen to paper and really opened up about my experiences with ABS. Since then I’ve read so many stories from parents about their kids being awesome; it’s through family support that you realise you’re just as important to society as everyone else.


I’ve recently joined up to an ABS support group on Facebook. Surprisingly enough, it’s not the kind of ABS that Clarkson,

Read more Stuart’s Story: 32 years and counting…

Sergio’s ABS story

My son Sergio  was born 06/20/2000 with ABS syndrome.  At the time that he was born I had never heard of this  condition.

Sergio was born with all his fingers but 3  fingers where webbed and short on his right hand and on his left hand his middle and index finger webbed together he also had a clubfoot and toes on his feet are little nubs.  He had 3 constructive surgeries from 9 months to 1 1/2 years of age.

I remember the nurse in the nursery telling me when I was leaving with my newborn baby “don’t ever let any one tell him he can’t do anything”. 

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Mike Alt’s ABS Story

I was born in Santa Clara, California with ABS in December of 1989. I was a fully healthy baby except for the fact that I was born with only two full fingers on each hand. I was only given a pinky and a thumb and the rest in between were nubs. My parents faced a difficult choice. They were given two options; one they could try to perform a surgery on my hands that would extend the nubs and try to make them resemble full fingers to the best of their ability.

Read more Mike Alt’s ABS Story