Hi! My name is Christy and I was born with Amniotic Band Syndrome. It affected my fingers and toes. All of them are deformed, only my pinkies and thumbs look to be normal, with scarring around them all.
I’ve had at least 13 surgeries in my lifetime, but I hardly remember any of them. I believe I was 7 at my last surgery and then my parents let me decide whether or not I wanted any more. I told them no.
… Read more Christy’s ABS Story – Happy Endings
Our Son Daniel was born on 27.05.2010 with ABS which we were totally unaware of until he was born. My pregnancy was straight forward and Daniel was born two weeks early. Daniel has an older brother who was not affected by ABS.
All four of Daniels limbs were affected with the least being his left foot which has an extra bobble of skin attached to his second toe. The four fingers on his right hand are fused together although his thumb is fine.
… Read more Daniel’s ABS Story
Hi! My name is Maria, and I am 15 years old and from New Orleans, Louisiana. I have three older brothers, so that means that I am the princess of my family. When I was in my mom’s womb, the doctors thought that I was only covering up my toes, so they did
not have any speculation as to why they were not there. When I was born, they realized that my toes were in fact not there, and my fingers were constricted.
… Read more Maria’s ABS Story
The day for which I was waiting since a long time , come true on 07th Feb 2012. It was a long journey … to have my sweet little angel in my hand.
It was early morning 05.17 AM when I was blessed with little sweet girl “GEET”. For me it was and is the most beautiful moment of my life …. this moment was going to change my life forever… for initial 2 days I have just saw the face of baby ,
… Read more Geet’s ABS Story
My son, Cameron, was born Sept 24, 2012 with parts of his fingers and toes missing (amputated in utero), some fused (stuck together) and some deformed (twisted/banded/smaller or larger). It affected the digits (fingers and toes) from all four limbs.
After many losses, a lot of help from doctors and meds to help maintain my pregnancy and an extremely rough several months, my doctor scheduled an induction for me to be started on Oct 1st (one week prior to my due date) but our little man had other plans.
… Read more Cameron’s ABS Story
Imogen is our third daughter and was born 1st March, 2012. My pregnancy began as my previous two; however when we went to our 12 week scan for Down’s syndrome testing Imogen’s Nuchal Fold measured slightly larger than normal. Our OB assured us that this was quite normal as my blood test results gave us a 1 in 6000 chance of Down’s syndrome and not too stress, so upon taking that advice we didn’t think any more of it.
We had our next scan on the 5th Oct 2011 and I’ll never forget that day,
… Read more Imogen’s ABS Story
On October 28th in 1996, a little girl was born, 6 lbs. 12 oz. She was beautiful, thick, black, curly hair, with rosy red cheeks! My name is Kayla Ashley Turner, and this is the story of my life. I don’t have an ordinary life; I was born “special”.
I was born with ABS (Amniotic Band Syndrome). Amniotic Band Syndrome is when the fetus becomes tangled in fibrous string-like bands in the womb, restricting blood flow which affects the baby’s development.
… Read more Kayla’s ABS Story
14 months ago on October 20,2009 I gave birth to my little bundle of joy, De’Vante. He was born with ABS which caused him 2 have a below the knee amputation in urtero on his left leg. On top of that, he was also born with fused fingers and toes on his left hand and right foot.
Before I had my first ultrasound, I had never heard anything about ABS…and I would have never dreamed it could happen to my child because I was so careful during my pregnancy.
… Read more De’Vante’s ABS Story
Alysa was diagnosed with clubfeet during our first ultrasound. When she was born we discovered she also had ABS. It caused her to lose all the toes on one foot, two on the other and part of 3 of her fingers (including half of one of her thumbs). We even noticed after having surgery to release her Achilles Tendons (for her club feet) that there was a mark above her ankle on one side- and soon discovered it was from a band that had broken,
… Read more Alysa’s ABS Story
Ana was born on May 28th, 1996 with Amniotic Band Syndrome.
Ana was also born with a cleft palate. Her feet have never been diagnosed, but she is missing a knuckle in her pinky toes, along with being VERY flat footed which causes her to walk oddly.
I am so happy to have found your site!! When Ana was born we felt like there was no information out there, plus ABS is kind of rare, so we never met anyone that had experienced ABS.
… Read more Ana’s ABS Story