Abby’s story

Hi! My name is Abby and I’m 13 years old. I was born with ABS on my left hand and my right foot. On my left hand, my index finger is a little nub. The rest of my fingers are full, but the skin looks kind of weird. It isn’t too noticeable. On my right foot, my big toe is a nub. The rest of my toes are perfectly fine.

My mom always tells me that when she found out I had ABS,

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Daniel’s ABS Story

Our Son Daniel was born on 27.05.2010 with ABS which we were totally unaware of until he was born. My pregnancy was straight forward and Daniel was born two weeks early. Daniel has an older brother who was not affected by ABS.

All four of Daniels limbs were affected with the least being his left foot which has an extra bobble of skin attached to his second toe. The four fingers on his right hand are fused together although his thumb is fine.

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Maria’s ABS Story

Hi! My name is Maria, and I am 15 years old and from New Orleans, Louisiana. I have three older brothers, so that means that I am the princess of my family. When I was in my mom’s womb, the doctors thought that I was only covering up my toes, so they did
not have any speculation as to why they were not there. When I was born, they realized that my toes were in fact not there, and my fingers were constricted.

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Alysa’s ABS Story

Alysa was diagnosed with clubfeet during our first ultrasound. When she was born we discovered she also had ABS. It caused her to lose all the toes on one foot, two on the other and part of 3 of her fingers (including half of one of her thumbs). We even noticed after having surgery to release her Achilles Tendons (for her club feet) that there was a mark above her ankle on one side- and soon discovered it was from a band that had broken,

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Bryant’s ABS Story

I am a mother of a 15 year old who was born in June of 1991. My husband was stationed in Scweinfurt Germany. Our pregnancy was very normal. I felt great. I have asthma and had to take prednisone throughout my pregnancy to breathe. Back then the ultra sounds were not as good as they are today. The army only authorized one at 4 months. I was very happy to see the heart and everything seeming normal. And maybe it was then but When he was born he had amniotic band syndrome on his left hand and left foot.

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Kaleb’s ABS Story

Kaleb Patrick Hinkle was born on January 17th, 2003 in Miamisburg, Ohio. Kaleb was diagnosed with Amniotic Band Syndrome when he was three days old. Kaleb has several defects. Both of Kaleb’s feet are severely clubbed, he is missing his pointer and middle finger on the right hand, his ring finger is very constricted on his right hand as well. His left hand is also affected. He has a very small thumb that has only one joint and his ring and pinky fingers were fused together by the bones.

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Michael’s ABS Story

Michael Daniel, was born with Amniotic Band Syndrome (ABS) affecting his right hand and his left foot. While we would have never wished for Michael to be born with differences, we wouldn’t trade him for anything. Michael is one special child we love him so much.

When we decided to start our family we had difficulty conceiving. After a year Wendy had invetro-fertilization. With much praying from our friends and family, to our amazement Wendy became pregnant. We were going to have a baby!

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Austin’s Story

Hi, I’m Austin. I was born in 1994, I’m 14 years old. I was born with a deformed left hand and two deformed feet. Growing up in today’s modern society is hard and being made fun of at school and being stared at in public sure doesn’t help. I hold on to hope that someday I will have a good family and be very successful in life. I have low self-esteem most of the time but I’m working on learning to live well and be happy and proud.

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Colleen’s ABS Story

Hi all! I am thrilled to have found this website. I never really researched my deformity nor have I really ever accepted it. I also have never met anyone with my deformity and it really was just out of the blue that I got on the computer and began to search for information about ABS. I am 22 years old and as others have written it is very easy to feel like an outsider, however, after finding this website, I finally have the courage to post my story and “come out” if you will,

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Elin’s ABS Story

My name is Elin and I am 28 years old. I just found out that I had ABS. I was surfing the internet about my “deformed” fingers on both hand and on toes on right foot. The doctors in Norway just called it syndactaly.

In addition to ABS I have Neurofibromatosis. To learn more about this disorder you l can go to

My “deformed” fingers haven’t stopped me from doing what I want to do. ABS effected both of my hands and my right foot.

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