Hello, my name is Jeanine and I was born in 1983 with Amniotic Band Syndrome. ABS affected four fingers on my left hand, my left arm above the elbow and my right leg was about an inch shorter and clubbed.
I had my first surgery in June of 1986. By the age of 2 after 13 surgeries my parents started to loose count, and I have had many more since then. The fingers on my left hand were webbed but I had surgery to separate them.
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My name is Jessica and I was born in 1984 with amniotic band syndrome. It affected both of my hands and feet and I also have club foot. I’ve had a total of about 6 surgeries between my hands and my feet. All were done within the first few years of my life. My index and middle fingers on my right hand were webbed together and separated in one of the surgeries. I have quite a bit of scaring.
As far as my hands go,
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Growing up a little different from other kids in my area was, at times, hellish. ABS affected most of the digits on my right hand as well as toes on both feet. Other children didn’t make fun of the situation as much as they would shy away. They didn’t understand and didn’t want to hurt my feelings by asking.
Recalling the first occasion where someone did get the courage up to ask (I think I might have been 8, maybe 9),
… Read more Jim’s ABS Story
My name is Katie, and I have nine fingers. I have about 1/4 of my middle finger on my right hand. I’m right handed, though, and the missing finger still makes it hard to write, which slows me down a bit at school sometimes.
After reading so much on this site, I consider myself one of the lucky ones. One missing finger and that’s it. The amniotic band wrapped around my whole right hand, and I still have marks from it on my other fingers,
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I was born in 1979 with Amniotic Band Syndrome. There was a band around my left leg just above my knee. I was born with a club foot and extremely diminished feeling. On my right foot my first three toes were affected. Both of my hands were also affected. I have my thumb and index fingers on both hands. The rest of my fingers grew together. Sort of like a duck’s webs.
I’ve had about fourteen surgeries. You lose track after a while.
… Read more Kaye’s ABS Story
Hi, my name is Kirsty & I was born with ABS 10th November 1975 in Christchurch, New Zealand.
I have scarring on my left index finger & missing the fingernail on my left middle finger. On my right hand, I have scarring on the index finger, & the middle finger is only up to the first knuckle with scarring. The next finger is completely missing & the little finger is up the first knuckle with a little bulbous mound.
I was born with a club foot on my left leg,
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My name is Melissa. I live in Maine and I am 26 years old. I was born with ABS. Three of the five fingers on my right hand, two of five on my left hand and my entire left foot is affected. Back in 1980 when I was born, not much was known about ABS, I personally have spent much time in the last 16 years trying to find out more. Sadly however, still to this day, there is not enough talk about Amniotic Band Syndrome.
… Read more Melissa’s ABS Story
I was born in 1965 with ABS. I have a missing ring finger & band around the middle finger of my left hand. On my right hand all four fingers were fused but my thumb was unaffected.
Both of my feet were clubbed. The right foot did not need surgery but my big toe was missing & the next 2 toes were stunted & webbed. My left leg needed lots of Surgery to correct & I have 2 bands one around my ankle &
… Read more Patsy’s ABS Story
Well my story begins November 19, 1958; I was born to two very young people who would turn out to be the best parents’ a child could have. I am very lucky. They endured all the surgeries, the stares, even people accusing my mom of putting rubber bands around my leg. Mom even had to live in San Raphael, California (90 miles from home)to be by my side, starting at the age of 6 months old. Dad stayed in Sacramento and worked very hard to keep their heads above water.
… Read more Terri’s ABS Story
Hi my name is Tracy and I was born October 11 1970. I was born with a left hand deformity. I have a thumb about half inch long banded at the base, pointer and middle finger are just little round stubs, my ring finger and pinky are also bout half inch long and fussed together. I do have fingernail on thumb and ring finger and pinky.
I have never had any corrective surgeries. Every time I say something to my mother about surgery she tells me not to do it,
… Read more Tracy’s ABS Story