Firstly, I really appreciate this site. I am currently 24 years old, almost 25. Until now, no one has ever actually given me a name for the birth defects I was born with. A friend called me today and told me he met someone who had similar looking defects to mine, so I started to research it with the name he gave me: Amniotic Banding Syndrome. It’s such an amazing feeling finally to know that there are others with the same conditions. I had always been told that my problems were just called “birth defects.”
I did not have an easy pregnancy. I was sick all the time, was extremely tired and only gained 8 pounds though out the pregnancy. I remember telling her dad it really hurts when she kicks which was unlike my first pregnancy where everything was fine, I remember praying lord please let her stop kicking because I feel like she is bruising my organs . I knew that something was wrong about the 24 week when I had only gained 4 pounds and was still wearing my regular cloths.
Shelbie was born on July 31, 2003 with bilateral clubfeet and amniotic band syndrome. I had had a pretty stressful pregnancy.
My triple-screens numbers were in the range where it looked like she was going to have down-syndrome. I opted not to have an amniocenteses as there is high rate of miscarriage. We were thrilled to find out we were having a girl as we already had a 3 year old son, Sean. Sean was late to deliver and I had stress tests and quite a few ultrasounds with him.
My name is Cathy Terblanche and this is my son, Stefan’s story. When my daughter, Danielle was 5 years old, my husband and I decided it was time for a second baby. I fell pregnant immediately. We were both delighted! My pregnancy was very different from the first pregnancy. He was a very quiet baby – obviously enjoying his sleep before coming out into this big world! I went for my regular monthly checks and each time a scan was done. I suffered terribly from morning sickness from day one to the very day he was born.
Tyler was born on February 2nd, 2002 after a very complicated pregnancy. I had developed pre-eclampsia and was put on bed-rest a month before I was induced. I had tons of ultrasounds. Two a week-including a 3-D ultrasound. None of them indicated any problems with the baby. I prayed my whole pregnancy that my little boy would be born healthy and perfect….you know the saying 10 fingers and 10 toes.
When I found out I was pregnant I was a newly-wed and only 19 years old.
My daughter, Holly, was born in 2000 with Amniotic Band Syndrome and clubfoot. Here is our story….
My water broke in the 32nd week of pregnancy, but I did not go into labor. I was placed on bed rest at the hospital and was given a steroid to help her lungs develop quickly in case I did go into labor. My doctor decided to induce labor in the 34th week to prevent the risk of infection to Holly. I only had one sonogram two days before labor was induced,
BIRTH – January 1993
I had wanted to get pregnant for a few years and had been on fertility medication prior to conceiving. I was very sick throughout the pregnancy but extremely happy. I would dance (as well as my bulging body would allow) and sing “Whoa-oa-oa! I feel good, do-be-do-be-do-do, I knew that I would, now….So good, so good, I got you.” Although I read the “What to Expect…” series and we went to pre-natal classes we weren’t prepared – I didn’t even have my bag packed!