Natalie’s ABS Story

My name is Lorena, Jaramillo, my husband and I have a beautiful 8 month old girl. Her name is Natalie she was born Feb 13, 2008. My whole pregnancy went very well all my ultrasounds and doctor visits went fine although I was very stressed out during my pregnancy because my husband is in the military and he was away for most of the pregnancy it was very hard for both of us to be away from each other.

We were waiting and counting the days for Natalie to be with us,

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Nathanael’s ABS Story

Nathanael was born on April 12, 1997 in Hong Kong at Prince of Wales Hospital.. At birth he presented with several issues, some of which were a missing right big toe and partial remaining toes; right club foot; intestines on the outside of his body and syndactly of his hands on both sides except his left thumb.

He lived at Prince of Wales until 14 months of age–an initial hand surgery and his clubfoot and abdominal repair surgeries were done then (the abdominal surgery was done at 1 day of age).

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Preston’s ABS Story

Preston’s Birth:

Our beautiful baby boy, Preston, was born on April 21, 2002, 3 weeks early. I had an ultrasound at 4 months and the technician didn’t notice anything wrong. When Preston was born, they whisked him away so fast I just got a glimpse of him and thought I saw something wrong with one of his hands. I told my husband to go look at him because I thought there was something wrong with one of his hands. Then I found out something was wrong with both of them.

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Rhianna’s ABS Story

I knew that having my daughter was not only going to change my life, but that she was heaven sent. This is a complete understatement. Here is my story…

During that time in my life I was involved in a very tumultuous relationship. I was shocked to find out I was pregnant as I was told I would never be able to conceive. I did on Valentines Day that year. The day after I found out I was pregnant I started bleeding.

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Charlotte’s ABS Story

My name is Charlotte and I was born on February 13, 1974. When I was born, the doctors called my condition Congenital Binding. No one knew what it was and I had lived most of my life not really knowing exactly what had happened. With help from my mother and her new family doctor, whom she began seeing a few years ago, they were able to pinpoint the cause.

When my mother was 4 months into her pregnancy, her water broke.

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Colleen’s ABS Story

Hi all! I am thrilled to have found this website. I never really researched my deformity nor have I really ever accepted it. I also have never met anyone with my deformity and it really was just out of the blue that I got on the computer and began to search for information about ABS. I am 22 years old and as others have written it is very easy to feel like an outsider, however, after finding this website, I finally have the courage to post my story and “come out” if you will,

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Elin’s ABS Story

My name is Elin and I am 28 years old. I just found out that I had ABS. I was surfing the internet about my “deformed” fingers on both hand and on toes on right foot. The doctors in Norway just called it syndactaly.

In addition to ABS I have Neurofibromatosis. To learn more about this disorder you l can go to

My “deformed” fingers haven’t stopped me from doing what I want to do. ABS effected both of my hands and my right foot.

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Jessica’s ABS Story

My name is Jessica and I was born in 1984 with amniotic band syndrome. It affected both of my hands and feet and I also have club foot. I’ve had a total of about 6 surgeries between my hands and my feet. All were done within the first few years of my life. My index and middle fingers on my right hand were webbed together and separated in one of the surgeries. I have quite a bit of scaring.

As far as my hands go,

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Kaye’s ABS Story

I was born in 1979 with Amniotic Band Syndrome. There was a band around my left leg just above my knee. I was born with a club foot and extremely diminished feeling. On my right foot my first three toes were affected. Both of my hands were also affected. I have my thumb and index fingers on both hands. The rest of my fingers grew together. Sort of like a duck’s webs.

I’ve had about fourteen surgeries. You lose track after a while.

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Patsy’s ABS Story

I was born in 1965 with ABS. I have a missing ring finger & band around the middle finger of my left hand. On my right hand all four fingers were fused but my thumb was unaffected.

Both of my feet were clubbed. The right foot did not need surgery but my big toe was missing & the next 2 toes were stunted & webbed. My left leg needed lots of Surgery to correct & I have 2 bands one around my ankle &

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