Last year in 2013 August, I gave birth to the most beautiful child ever, my son. When the doctors took him and he was being cleaned, I saw two nurses chatting. their faces were serious, but because I was still being stitched I could not tell what was going on. To my surprise later when my husband asked me about my son’s toes…..Doctor came later to tell me that my son had no toes on his right foot. I cried not knowing how to deal with this.
I’ve lived with amniotic bands syndrome for 31 years. I was born with two thumbs, fingers fused together and a missing toe.
I was born in a refugee camp in Thailand so unfortunately for me my parents have no medical records to share with me. We were sponsored to the US about a few months after I was born. I was told I was in and out of the UC Davis hospital but I honestly don’t remember going through any of the procedures/surgeries.
My names Alyssa and I am 16 years old. I have ABS towards my hands and feet. I live as much of a normal 16 year old life as I can I do sports and have a boyfriend, I’m a junior in high-school, and now have my permit to drive.
When I was younger every year or so I had to go to Shriners Hospital to get blood work done on my feet, the hands were less of a concern. The doctors a first thought id never walk due to the severity of the toes,
… and I wouldn’t trade them for anything in the world.
I was born with ABS, I’ve never really understood exactly what it was till now. Of course anyone can Google it and when I did I realized just how lucky I was that it only affected my fingers and toes. It truly is amazing how unique they are! (:
I’ve had several surgeries since I was 6 months old and each and every time I’ve learned to love my fingers and toes more and more.
The following is a blog I first posted back in 2010. It’s still the only time I’ve put pen to paper and really opened up about my experiences with ABS. Since then I’ve read so many stories from parents about their kids being awesome; it’s through family support that you realise you’re just as important to society as everyone else.
Stuart
I’ve recently joined up to an ABS support group on Facebook. Surprisingly enough, it’s not the kind of ABS that Clarkson,
My son Sergio was born 06/20/2000 with ABS syndrome. At the time that he was born I had never heard of this condition.
Sergio was born with all his fingers but 3 fingers where webbed and short on his right hand and on his left hand his middle and index finger webbed together he also had a clubfoot and toes on his feet are little nubs. He had 3 constructive surgeries from 9 months to 1 1/2 years of age.
I remember the nurse in the nursery telling me when I was leaving with my newborn baby “don’t ever let any one tell him he can’t do anything”.
Hi! My name is Christy and I was born with Amniotic Band Syndrome. It affected my fingers and toes. All of them are deformed, only my pinkies and thumbs look to be normal, with scarring around them all.
I’ve had at least 13 surgeries in my lifetime, but I hardly remember any of them. I believe I was 7 at my last surgery and then my parents let me decide whether or not I wanted any more. I told them no.
The day for which I was waiting since a long time , come true on 07th Feb 2012. It was a long journey … to have my sweet little angel in my hand.
It was early morning 05.17 AM when I was blessed with little sweet girl “GEET”. For me it was and is the most beautiful moment of my life …. this moment was going to change my life forever… for initial 2 days I have just saw the face of baby ,
My son, Cameron, was born Sept 24, 2012 with parts of his fingers and toes missing (amputated in utero), some fused (stuck together) and some deformed (twisted/banded/smaller or larger). It affected the digits (fingers and toes) from all four limbs.
After many losses, a lot of help from doctors and meds to help maintain my pregnancy and an extremely rough several months, my doctor scheduled an induction for me to be started on Oct 1st (one week prior to my due date) but our little man had other plans.
Hi…I have a three month old son who was born missing all toes except for his big toe on his right foot and three toes on his left foot. The day he was born the nurse took him to clean him off and I was over joyed at the thought of being a new mom. Soon the nurse came over without my son and told me that he had something wrong with his feet. All I felt at that moment was my heart drop to the floor because everything I was hoping for my child came crashing to the ground….one minute you are pushing and can’t wait to see that happy healthy baby and the next you find out there is something wrong with them and the whole world you live in comes crashing to the floor.
