Alysa’s ABS Story

Alysa was diagnosed with clubfeet during our first ultrasound. When she was born we discovered she also had ABS. It caused her to lose all the toes on one foot, two on the other and part of 3 of her fingers (including half of one of her thumbs). We even noticed after having surgery to release her Achilles Tendons (for her club feet) that there was a mark above her ankle on one side- and soon discovered it was from a band that had broken,

Read more Alysa’s ABS Story

Ana’s ABS Story

Ana was born on May 28th, 1996 with Amniotic Band Syndrome.

Ana was also born with a cleft palate. Her feet have never been diagnosed, but she is missing a knuckle in her pinky toes, along with being VERY flat footed which causes her to walk oddly.

I am so happy to have found your site!! When Ana was born we felt like there was no information out there, plus ABS is kind of rare, so we never met anyone that had experienced ABS.

Read more Ana’s ABS Story

Bryant’s ABS Story

I am a mother of a 15 year old who was born in June of 1991. My husband was stationed in Scweinfurt Germany. Our pregnancy was very normal. I felt great. I have asthma and had to take prednisone throughout my pregnancy to breathe. Back then the ultra sounds were not as good as they are today. The army only authorized one at 4 months. I was very happy to see the heart and everything seeming normal. And maybe it was then but When he was born he had amniotic band syndrome on his left hand and left foot.

Read more Bryant’s ABS Story

Caitlin’s ABS Story

The day I found I was pregnant for the third time (two previous miscarriages) I was scared, excited, HAPPY. My husband and I are what you would call high school sweethearts, married young. After the first two pregnancies, this one was unexpected. My pregnancy was really uneventful, with the exception of the last 4 months. I kept feeling sudden movements, then none. I would be so sick, my stomach kept feeling tight, tight, however I was told numerous times nothing was wrong. Every appointment my husband and I held our breaths waiting to hear a heartbeat,

Read more Caitlin’s ABS Story

Dionne’s ABS Story


Dionne was born on March 9th 2000, after a very complicated pregnancy, I was 20 years old expecting my first child, My baby was due on the 25th of May 2000. At 20 wks gestation I experienced headaches and numbness this started 2 months into my pregnancy with other symptoms severe backache the passing of water and I became violently ill, this continued for the rest of my pregnancy but my ob/gyn were not concerned. I attended the early pregnancy assessment unit because I was bleeding 3 months into pregnancy no obvious cause for bleeding they insisted my baby girl was fine.

Read more Dionne’s ABS Story

Hannah’s ABS Story

My daughter Hannah was not a planned pregnancy at all, but later on she became the best thing that has ever happen to my husband and me. I was going to school in Southern University in Illinois, one day in the middle of October I had extreme pain in my abdominal area. I went to the ER where I found out that I was pregnant. They first thought that she was eptopic, but three weeks later she was in the right place. Though I did still have uncomfortable cramping through those next few weeks,

Read more Hannah’s ABS Story

Isabella’s ABS Story

Hi my name is Loureen. I have a son who is seven years old and a daughter named Isabella who was born at 32 weeks at 4 lbs on July 4, 2002 with ABS. During my pregnancy I had twice the normal amount of prenatal appointments and several ultrasounds as I was considered to be high risk; my son had been born at 28 weeks for no apperant reason.

When I was 20 weeks I decided to have a video ultrasound done through a private ultrasound tech just as a had done previously with my son.

Read more Isabella’s ABS Story

Jocelynn’s ABS Story

Jocelynn Breanne Curlis was born on April 25th, 2006 at St. Peters Hospital in Lacey, WA. Her father and I were so glad to meet our wonderful daughter as soon as she came out of my womb. There seemed to be a problem that everyone seemed to notice. She didn’t look like the other babies that most every doctor or parent sees in their baby. She was missing four fingers on her left hand and two on her right. As well as some minor problems with her toes.

Read more Jocelynn’s ABS Story

Kaitlyn’s ABS Story

Kaitlyn was born amputated fingers on her left hand and her first three toes on her right foot. She had a constriction band around her right wrist and her left leg. Also, she has clubfoot on her right foot. The fingers and toes that was amputated was grown together. We have had the fingers separated and the constriction bands removed. We have been thru the casts and braces for two years to fix the clubfoot and still go to Children’s in Little Rock.

Read more Kaitlyn’s ABS Story

Kaleb’s ABS Story

Kaleb Patrick Hinkle was born on January 17th, 2003 in Miamisburg, Ohio. Kaleb was diagnosed with Amniotic Band Syndrome when he was three days old. Kaleb has several defects. Both of Kaleb’s feet are severely clubbed, he is missing his pointer and middle finger on the right hand, his ring finger is very constricted on his right hand as well. His left hand is also affected. He has a very small thumb that has only one joint and his ring and pinky fingers were fused together by the bones.

Read more Kaleb’s ABS Story