February 16th is a day that will always be remembered clearly to me. That was the first day I would hear the term, “Amniotic Band Syndrome”.
I was a mother of two when I got pregnant with Miranda, and even though my boyfriend and I had no desire to have another baby, one was coming and we had to prepare. I called the ob/gyn and made an appointment to start my prenatal care. I was put on the schedule to come in the following week.
… Read more Miranda’s ABS Story
My name is Lorena, Jaramillo, my husband and I have a beautiful 8 month old girl. Her name is Natalie she was born Feb 13, 2008. My whole pregnancy went very well all my ultrasounds and doctor visits went fine although I was very stressed out during my pregnancy because my husband is in the military and he was away for most of the pregnancy it was very hard for both of us to be away from each other.
We were waiting and counting the days for Natalie to be with us,
… Read more Natalie’s ABS Story
Nathanael was born on April 12, 1997 in Hong Kong at Prince of Wales Hospital.. At birth he presented with several issues, some of which were a missing right big toe and partial remaining toes; right club foot; intestines on the outside of his body and syndactly of his hands on both sides except his left thumb.
He lived at Prince of Wales until 14 months of age–an initial hand surgery and his clubfoot and abdominal repair surgeries were done then (the abdominal surgery was done at 1 day of age).
… Read more Nathanael’s ABS Story
Hi all! I am thrilled to have found this website. I never really researched my deformity nor have I really ever accepted it. I also have never met anyone with my deformity and it really was just out of the blue that I got on the computer and began to search for information about ABS. I am 22 years old and as others have written it is very easy to feel like an outsider, however, after finding this website, I finally have the courage to post my story and “come out” if you will,
… Read more Colleen’s ABS Story
My name is Elin and I am 28 years old. I just found out that I had ABS. I was surfing the internet about my “deformed” fingers on both hand and on toes on right foot. The doctors in Norway just called it syndactaly.
In addition to ABS I have Neurofibromatosis. To learn more about this disorder you l can go to http://www.nf.org.
My “deformed” fingers haven’t stopped me from doing what I want to do. ABS effected both of my hands and my right foot.
… Read more Elin’s ABS Story
My name is Hyla Hope Harder. I was born June 1, 1943. At that time no one said ABS or Constriction Band Syndrome so my parents were only told that my left hand and right foot had “gotten caught” in my mother’s womb. The large toe on my foot and the toe next to the large toe had gone into necrosis from strangulation so the day after I was born, one and 1/2 toes had to be amputated.
I had the two most wonderful parents in the world.
… Read more Hope’s ABS Story
Hello. I am so glad my fiance found this site. I am nearly 21 years old and I have never met anyone with any deformities like mine. It is so easy to feel like an outsider with deformities such as mine, and I was very interested to be able to read other people’s stories. Here is a brief caption of my story:
I as born on December 31, 1984. I was the first child in my family and the only born with these deformities.
… Read more Jamie’s ABS Story
Growing up a little different from other kids in my area was, at times, hellish. ABS affected most of the digits on my right hand as well as toes on both feet. Other children didn’t make fun of the situation as much as they would shy away. They didn’t understand and didn’t want to hurt my feelings by asking.
Recalling the first occasion where someone did get the courage up to ask (I think I might have been 8, maybe 9),
… Read more Jim’s ABS Story
Hi, my name is Kirsty & I was born with ABS 10th November 1975 in Christchurch, New Zealand.
I have scarring on my left index finger & missing the fingernail on my left middle finger. On my right hand, I have scarring on the index finger, & the middle finger is only up to the first knuckle with scarring. The next finger is completely missing & the little finger is up the first knuckle with a little bulbous mound.
I was born with a club foot on my left leg,
… Read more Kirsty’s ABS Story